Re: Re: BIG issue! / Holly

[Guest guest]

What about sending it to Jane ey?

Holly hollywasilewski@...> wrote:

I think we all think about this. In one of the baby books I've made

for Zach I wrote something about giving Dr. Ponseti " longevity

pills " . Like all of you, I consider Dr. Ponseti to be an angel of

sorts - I have yet to encounter a doctor who is as dedicated (truly

so) as Dr. Ponseti. I'm always in awe when I call him (or he calls

me back!!!!) and he talks with me as if he has nothing else to do

but listen to my concerns and help. Having said all that - I think

it's a serious concern - what will happen when Dr. Ponseti is no

longer with us. It's one I'd rather not think about - but should...

You mentioned contacting Oprah or Dateline. This was big on the

board a few months back (maybe it was this summer?). Many people

emailed Oprah from our list, there is a letter (or at least used to

be, I haven't checked lately) in the files section that can be used

to send to the Media. I've emailed Oprah myself (a couple of times

actually) and I know 's wife sent a wonderful letter to her as

well. Although this topic has been discussed over and over again -

I'm always glad when I see it come up again. That's what's needed

to keep us motivated to get the word out there - you know what they

say about the squeaky wheel? We've got to keep on squeakin! Thanks

for bringing this topic up - as I will pull out our clubfoot story,

dust it off, tweak it and send it AGAIN!!

Holly

Zachary 7/27/02

Right C/F Treated by Dr. Ponseti

DBB Nights Only

>

> Hey everyone!

>

> Thought I'd bring this up now, I've thought of it often, and since

> I've joined this group it seems to become more of a concern of

mine,

> and maybe yours too...

>

> What is going to happen when Dr. Ponseti stops practicing. As

many

> of you know he is (for lack of a better word) old. I'm just

> wondering if there are enough doctors out there staunch enough to

> carry on doing what he's been doing for our beautiful clubfooted

> babies. The man is a " saint " in the world of clubfoot, if you ask

> me and where would our children be without him.

>

> Seriously, I'm thinking we should contact Dateline or Oprah to get

> the word out, joking and not-joking here. I'm so glad we have this

> group but not everyone finds their way here and some doctors, who

> don't know what they're doing, are doing atrocious things to

babies.

>

> I know I sound a little crazy,lol, but I think it's a valid point

> and hope you agree.

>

> June