our gentics study at the NIH

[Guest guest]

Just wanted to let you guys know that all of our studies for the NIH came back

normal. They were trying to connect our Mito disease to all the other issues we

have in our family........ cleft lip and palate, missing fingers, toes, arms

etc, structural heart issues and learning issues.

There is another doctor doing a study where they paint the chromosomes and the

doctor we have worked with is trying to get us into this study. She feels they

are going to accept us, but hasn't gotten the official YES yet.

Just wanted to let everyone know since so many of you have been around since the

beginning with us.

Cindy