Guest guest Posted August 4, 2005 Report Share Posted August 4, 2005 Hi- As you know I have developed a severe cardiomyopathy over the last year. My echo showed this last time that my EF has decreased from 40% to 20%. I've become symptomatic since April with alot of shortness of breath, high resting heart rate, tachycardia,etc. My cardiologist feels it's all caused by the mito and that is can't be reversed or really treated. My PCP however feels it has to be addressed and has just prescribed Lanoxin for me. He said that the Lanoxin will help with symptoms but will not improve my heart or stop the progression of the heart failure. I'm feeling scared as to what to do. I've been told I'm not a candidate for either of the types of med's used for CHF (Beta Blockers, Ace Inhibitors) as my blood pressure is very low. It was 76/48 at the doc and I was nervous. Since I have POTS my BP completely bottoms out when I change positions. I was wondering if any of you knew of a good cardio who would see me that treats heart failure caused by and associated with mitochondrial disease. I'm willing to travel as this is so urgent and pressing. Thanks so much! Quote Link to comment Share on other sites More sharing options...
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