Guest guest Posted September 20, 2001 Report Share Posted September 20, 2001 Hi Heidi, So glad to hear you are doing better.. I was worried. I'm also glad to hear your M-I-L is doing better!! Love Ya, Sandy Yup, it is me the okie. LOL I want to say thank you all very much for your Prayers. I am doing much better. I hope you all doing the same. Don is really doing great with his RP. Even all the stress we had here lately. I really think it is because he does take his medicine ON TIME every day. What I hope you all doing also !!!!! Everything her is back to normal. Thank God . Yup, even the M.I. L. is back in the nursing home. Doing much better with the new medicine let me tell you. Now to me >LOL My daughter and her friend envided me for Coffee and donuts the other morning. Wow did I enjoy that. LOL So did my Daughter. LOL Because I can not sit still for very long as you all know so I got her Ironing board out and did her ironing while we visit and had Coffee. LOL O well I enjoyed it. So if you invite me offer just save your Ironing and I do it while we chit Chad. LOL Well I better get going here have some more things to do. Yup, I have a few thing I need to do so please understand that I might not get to post to you all everyday for a little while OK .I still be thinking of you and Praying for each of you to get better real quick. OK Sending you all a Gentle Hug from Okie'land. Love Heidi DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2001 Report Share Posted September 20, 2001 Hi Heidi, So glad to hear you are doing better.. I was worried. I'm also glad to hear your M-I-L is doing better!! Love Ya, Sandy Yup, it is me the okie. LOL I want to say thank you all very much for your Prayers. I am doing much better. I hope you all doing the same. Don is really doing great with his RP. Even all the stress we had here lately. I really think it is because he does take his medicine ON TIME every day. What I hope you all doing also !!!!! Everything her is back to normal. Thank God . Yup, even the M.I. L. is back in the nursing home. Doing much better with the new medicine let me tell you. Now to me >LOL My daughter and her friend envided me for Coffee and donuts the other morning. Wow did I enjoy that. LOL So did my Daughter. LOL Because I can not sit still for very long as you all know so I got her Ironing board out and did her ironing while we visit and had Coffee. LOL O well I enjoyed it. So if you invite me offer just save your Ironing and I do it while we chit Chad. LOL Well I better get going here have some more things to do. Yup, I have a few thing I need to do so please understand that I might not get to post to you all everyday for a little while OK .I still be thinking of you and Praying for each of you to get better real quick. OK Sending you all a Gentle Hug from Okie'land. Love Heidi DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2001 Report Share Posted September 20, 2001 Heidi, Glad to hear you are better! Thanks for letting us know how Don is doing too! Good to hear the M.I.L. is doing better too! Heck I am just glad all around!LOL Love you Glenda ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.281 / Virus Database: 149 - Release Date: 9/18/2001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2001 Report Share Posted September 20, 2001 Heidi, Glad to hear you are better! Thanks for letting us know how Don is doing too! Good to hear the M.I.L. is doing better too! Heck I am just glad all around!LOL Love you Glenda ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.281 / Virus Database: 149 - Release Date: 9/18/2001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2001 Report Share Posted September 21, 2001 In a message dated 9/20/01 5:36:29 PM Pacific Daylight Time, heidi@... writes: << Because I can not sit still for very long as you all know so I got her Ironing board out and did her ironing while we visit and had Coffee. LOL O well I enjoyed it. So if you invite me offer just save your Ironing and I do it while we chit Chad. >> Heidi, will you come over next Tuesday???? I'd love to have you for coffee.... HUGS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2001 Report Share Posted September 21, 2001 In a message dated 9/20/01 5:36:29 PM Pacific Daylight Time, heidi@... writes: << Because I can not sit still for very long as you all know so I got her Ironing board out and did her ironing while we visit and had Coffee. LOL O well I enjoyed it. So if you invite me offer just save your Ironing and I do it while we chit Chad. >> Heidi, will you come over next Tuesday???? I'd love to have you for coffee.... HUGS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 In a message dated 10/15/01 6:04:55 PM Pacific Daylight Time, OneSuperMema@... writes: << << I just wish I had part of there energy. >> Heidi, I want YOURS!! LOL Love you, T. >> , I'll second that one!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 In a message dated 10/15/01 6:04:55 PM Pacific Daylight Time, OneSuperMema@... writes: << << I just wish I had part of there energy. >> Heidi, I want YOURS!! LOL Love you, T. >> , I'll second that one!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2001 Report Share Posted October 26, 2001 Hi Marilyn yuk stinking fish !!! LOL Ja Don likes fish too. but mainly Lobster. Have you tried washing your hands with Lemon ?? This works real well for fish odor. You better hurry and come get you a piece of this cake here he eat already a 1/4 of it. LOL Yup, I am going to call him oink oink. LOL Heidi .. My hands still stink from > putting it in the smoker. I even washed them (my hands, of course) > with mouth wash. > Love, Marilyn K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2001 Report Share Posted October 26, 2001 Hi Marilyn yuk stinking fish !!! LOL Ja Don likes fish too. but mainly Lobster. Have you tried washing your hands with Lemon ?? This works real well for fish odor. You better hurry and come get you a piece of this cake here he eat already a 1/4 of it. LOL Yup, I am going to call him oink oink. LOL Heidi .. My hands still stink from > putting it in the smoker. I even washed them (my hands, of course) > with mouth wash. > Love, Marilyn K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2001 Report Share Posted October 26, 2001 Hi Heidi, Lemon won't work for this stinken fish. Tried that before too. Actually, the mouth wash works about the best of anything. I like lobster too. Can't afford it though, so I gotta cook what the guys catch since it's free. I won't eat it. They can have it. Have tried to cook this stuff every way you can think of and it still gags me. Even my cats won't eat it. You can let Don have my piece of cake. I'd rather have custard pie or lemon pie. LOL. Love, Marilyn K. Hi Marilyn yuk stinking fish !!! LOL Ja Don likes fish too. but mainly > Lobster. Have you tried washing your hands with Lemon ?? This > works real well for fish odor. You better hurry and come get you > a piece of this cake here he eat already a 1/4 of it. LOL Yup, I am > going to call him oink oink. LOL > Heidi > > . My hands still stink from > > putting it in the smoker. I even washed them (my hands, of course) > > with mouth wash. > > Love, Marilyn K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2001 Report Share Posted October 26, 2001 Hi Heidi, Lemon won't work for this stinken fish. Tried that before too. Actually, the mouth wash works about the best of anything. I like lobster too. Can't afford it though, so I gotta cook what the guys catch since it's free. I won't eat it. They can have it. Have tried to cook this stuff every way you can think of and it still gags me. Even my cats won't eat it. You can let Don have my piece of cake. I'd rather have custard pie or lemon pie. LOL. Love, Marilyn K. Hi Marilyn yuk stinking fish !!! LOL Ja Don likes fish too. but mainly > Lobster. Have you tried washing your hands with Lemon ?? This > works real well for fish odor. You better hurry and come get you > a piece of this cake here he eat already a 1/4 of it. LOL Yup, I am > going to call him oink oink. LOL > Heidi > > . My hands still stink from > > putting it in the smoker. I even washed them (my hands, of course) > > with mouth wash. > > Love, Marilyn K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2001 Report Share Posted November 20, 2001 hi heidi well i am keeping up with you for once. finished christmas shopping, all of it is wrapped and my cards are addressed and ready to go in the mail. i know what you mean abou the two to three for overseas, we have to mail our girl in england hers right after thanksgiving for them to have it by chrismas how are you feeling. hope good, please, plese take care of your self love ya dawn --- Heidi Main wrote: > Hallo Everyone !!! > > Hope you all had a great pain free weekend. > I thank you all for sending me the information > sides. Yes the did help. Thanks again. I been > real busy today. Now don't tell or she come > after me with her pointy shoes. LOL > I wrapped all the X mas gifts and boxed them up so > all I have to do tomorrow is take them to the post > office. heheheh. Now the only thing I have left to > do is someday soon I mean before the 24 dec. lol > but up the x mas tree. gee you guys want to help ?? > LOL That is as bad as wrapping presents. Gee my way > of wrapping idea is stick it in a wal mart bag slap > on a bow > Finished LOL yup you guessed it I hade to do that. > LOL Here in okie land the post office is saying > mail early because it will take longer this year. > wow I bet the want more money soon. It > normaly takes 2 to 3 week to reach germany. > LOL Mr. Ornery here is doing fine he is now > in the 3th week of 2 mg. of Prednison. He will stay > on it till after the holidays. So just maybe this > time it will work for him. Lord we praying it will. > Plus he is still loosing weight. Boy is he strutting > that too LOL .Well lets see what the holidays do to > him LOL Ja got to go tomorrow > and bye his Ham. No he wont eat turkey. I like > turkey mmm I am married to one LOL O I better get > back in my corner here and hush . LOL > Sending you all a BIG gentle hug. > Love you > Heidi > > > > > > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2001 Report Share Posted November 20, 2001 hi heidi well i am keeping up with you for once. finished christmas shopping, all of it is wrapped and my cards are addressed and ready to go in the mail. i know what you mean abou the two to three for overseas, we have to mail our girl in england hers right after thanksgiving for them to have it by chrismas how are you feeling. hope good, please, plese take care of your self love ya dawn --- Heidi Main wrote: > Hallo Everyone !!! > > Hope you all had a great pain free weekend. > I thank you all for sending me the information > sides. Yes the did help. Thanks again. I been > real busy today. Now don't tell or she come > after me with her pointy shoes. LOL > I wrapped all the X mas gifts and boxed them up so > all I have to do tomorrow is take them to the post > office. heheheh. Now the only thing I have left to > do is someday soon I mean before the 24 dec. lol > but up the x mas tree. gee you guys want to help ?? > LOL That is as bad as wrapping presents. Gee my way > of wrapping idea is stick it in a wal mart bag slap > on a bow > Finished LOL yup you guessed it I hade to do that. > LOL Here in okie land the post office is saying > mail early because it will take longer this year. > wow I bet the want more money soon. It > normaly takes 2 to 3 week to reach germany. > LOL Mr. Ornery here is doing fine he is now > in the 3th week of 2 mg. of Prednison. He will stay > on it till after the holidays. So just maybe this > time it will work for him. Lord we praying it will. > Plus he is still loosing weight. Boy is he strutting > that too LOL .Well lets see what the holidays do to > him LOL Ja got to go tomorrow > and bye his Ham. No he wont eat turkey. I like > turkey mmm I am married to one LOL O I better get > back in my corner here and hush . LOL > Sending you all a BIG gentle hug. > Love you > Heidi > > > > > > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2001 Report Share Posted November 21, 2001 In a message dated 11/20/01 11:48:32 AM Pacific Standard Time, dmorgan26347@... writes: << well i am keeping up with you for once. finished christmas shopping, all of it is wrapped and my cards are addressed and ready to go in the mail. i >> Geez Dawn, if Heidi can't make it .... will you come to Calif and help me. LOL (What's wrong with you people?? Don't you know you're suppose to wait til the 24th!) LOL hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2001 Report Share Posted November 21, 2001 In a message dated 11/20/01 11:48:32 AM Pacific Standard Time, dmorgan26347@... writes: << well i am keeping up with you for once. finished christmas shopping, all of it is wrapped and my cards are addressed and ready to go in the mail. i >> Geez Dawn, if Heidi can't make it .... will you come to Calif and help me. LOL (What's wrong with you people?? Don't you know you're suppose to wait til the 24th!) LOL hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2001 Report Share Posted December 8, 2001 Kathi, isn't it amazing what little Miss Nosey does for us all.. I just wish you could all meet her.. She is one special person... She made all of us feel so at home at her house in Okieland in Sept... I don't think I've ever met anyone as special. And Yes...she will always put a smile on your face.... Heidi...can you tell I Love ya bunches...? hugs << Thank you so much for all of your hard work and the joy you bring to this group!! I can't tell you how many days that I have felt so bad that I couldn't hold my head up and then there is a post from you and all of the sudden, I am laughing and feeling much better!! Thanks again, Kathi >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2001 Report Share Posted December 8, 2001 Kathi, isn't it amazing what little Miss Nosey does for us all.. I just wish you could all meet her.. She is one special person... She made all of us feel so at home at her house in Okieland in Sept... I don't think I've ever met anyone as special. And Yes...she will always put a smile on your face.... Heidi...can you tell I Love ya bunches...? hugs << Thank you so much for all of your hard work and the joy you bring to this group!! I can't tell you how many days that I have felt so bad that I couldn't hold my head up and then there is a post from you and all of the sudden, I am laughing and feeling much better!! Thanks again, Kathi >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2001 Report Share Posted December 10, 2001 T. LOL I am the one that feels slighted! You had the real angel today. She even sang happy birthday to you! ) Love you Glenda Heidi In a message dated 12/10/2001 6:00:01 PM Central Standard Time, Rpolychondritis writes: Heidi,Thank you so much for the holiday angel! I was beautiful!Lots of LoveGlendaHeidi,Okay, Heidi, I'm feeling slighted here. I'm on Digest and don't get the little "extras." : )Love YOU, T. DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2001 Report Share Posted December 10, 2001 T. LOL I am the one that feels slighted! You had the real angel today. She even sang happy birthday to you! ) Love you Glenda Heidi In a message dated 12/10/2001 6:00:01 PM Central Standard Time, Rpolychondritis writes: Heidi,Thank you so much for the holiday angel! I was beautiful!Lots of LoveGlendaHeidi,Okay, Heidi, I'm feeling slighted here. I'm on Digest and don't get the little "extras." : )Love YOU, T. DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2003 Report Share Posted May 20, 2003 Hello Heidi, Thanks for the ginger tip. I did contact my GI and he called in a prescription for Compazine. My nausea was definitely a precursor to a fairly bad flare up. I was so nauseous all day Monday and coming out the bottom end like crazy! Since I started my enzymes that part hasn't been as bad. I ended up having a decent attack on Monday night. But had pretty bad one tonight. It has taken me since about 4:00 this afternoon to get the pain under control. It is now 1:00 am Wednesday morning. I was giving it until about 2 am before I headed to the ER. So I am glad it has mellowed out. I didn't want to go there! I still haven't slept since 8:00 am Monday morning. Between the nausea last night and the pain killers (they keep me wide awake) I haven't been able to fall asleep. Although as I am writing I feel the wave of sleep coming over me. Yea! Again...thanks for the tip! Sending lots of happy thoughts your way.... Marisa~San Diego, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2003 Report Share Posted May 27, 2003 - Hi Heidi No I didnt get it arghhhh Try again please my email is colind@... take care Debs -- In pancreatitis , " hhessgriffeth " <hhessgriffeth@h...> wrote: > > > How you doing I tried emailing youa c ouple of times but I dont > think it worked > Debs > > Debs, > > I've tried the same, and the emails were returned. Just tried it > again, so let me know if you get it. > > Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 Happy Birthday Adeline! Sorry to hear of her seizure. Glad she was able to come home quickly though. See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into Mito using a photo collage of my girls at www.heartbeatsformito.org Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting... Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID, GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery, disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency... Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), & Marquis (2) (some with Mito symptoms) Re: the streak ends... > > Sorry to hear about your daughter. Hope she if feeling better. > > I had the same thing happen to me yesterday. It was Adelines 3rd birthday > yesterday and it has been 10 months that she had not had a seizure. I > thought we would make it one year. She had a gran mal seizure in the > afternoon, out of nowhere. She was taken to the Children's hospital, but > couldn't find anything wrong with her and we were sent home later in the > evening. I can't believe she had to spend another birthday at the > hospital. > > heidi > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 Happy Birthday Adeline! Sorry to hear of her seizure. Glad she was able to come home quickly though. See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into Mito using a photo collage of my girls at www.heartbeatsformito.org Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting... Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID, GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery, disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency... Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), & Marquis (2) (some with Mito symptoms) Re: the streak ends... > > Sorry to hear about your daughter. Hope she if feeling better. > > I had the same thing happen to me yesterday. It was Adelines 3rd birthday > yesterday and it has been 10 months that she had not had a seizure. I > thought we would make it one year. She had a gran mal seizure in the > afternoon, out of nowhere. She was taken to the Children's hospital, but > couldn't find anything wrong with her and we were sent home later in the > evening. I can't believe she had to spend another birthday at the > hospital. > > heidi > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2006 Report Share Posted February 10, 2006 HI All, Heidi C. asked me to update on how she's doing. She is still in the rehab hospital in Boston and has had quite a month. She has a central line b/c of being on TPN and ended up with a central line infection in December. She had a new central line placed, but when she woke up from the line placement she was unable to move for several days and had a stroke like episode. Then, they placed a GJ tube and several days later she had another stroke like episode, losing function in her left hand. She is still having quite a bit of trouble walking, moving, sitting and just plain functioning, but she is moving in the right direction. Her determination to keep going is pretty amazing. Some of you may remember that Heidi lost her 3 yr old daughter to mito back in Sept, so this has hit her quite hard. But, she's persevering despite what her family has faced recently. Please keep her in your prayers. Malisa Quote Link to comment Share on other sites More sharing options...
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