Re: Message from Chrissy - important

[Guest guest]

Dear Chrissy,

This sort of thing has happened with Finlay in the past. Its very

difficult to maintain blood sugar levels when the volume that Maddy

will tolerate is so low. One thing you can do is add extra glucose

to her overnight feed - but you have to be really careful becuase if

you add too much it can cause diarrea - to be honest if she is

tolerating so little over night and losing weight with blood sugars

out of control - I think what I would be doing is taking her in for

IV sugars to get her stable. Sometimes the vomiting at night can be

caused by low blood sugars so it really is a catch 22. It sounds

like Dr H is not able to be contacted but would your local hospital

admit her without Dr H having to be contacted? Could some one from Dr

H's team communicate with your local drs instead?

Let me know how you go.

Will be thinking about you

> I received the following email from Chrissy. She is really upset

> about her daughter Maddy and needs some advice. I already told her

> to call Dr. H.'s office and speak to the fellow on-call who knows

> how to reach Dr. H. in Hawaii, but she would really like to hear

> from some of you, too. You can send your replies to me at magicrss

> @hotmail.com and I will forward them.

>

> Jodi Z.

>

>

>

> Madison has been throwing up her tube feeds since last friday.

She's

> fine

> >during the day and eats ok but at night when i put her on the pump

> she throws

> >up. She is usually on 35cc but i have cutr it down to 19cc's and

> she still

> >gets sick. I have had her to my docs 3 times and to the er they

> took exrays of

> >her belly and did an upper GI they say the tube is in the right

> place but

> >somethings wrong. She's loosing weight and her sugars are going

> crazy. NOONE knows

> >whats wrong and they aren't doing a damn thing to find out either.

> please post

> >this and see if anyone can shine some light on this subject. She

> goes next

> >week to see about growth hormone mostly to help maintain her sugar

> so i'll let

> >you know how that goes.