Re: MARY: Updates and Requests

[Guest guest]

- I just wrote it on my " weekend To Do " list so I will try and

not forget. Steve is going skiing with for the 3 day break

with her Indian Princess tribe, so it is just Ty and I....

I am so glad to hear the positive results of Connor's shoe lift.

Were you able to see/hear Bobbi McGrath's show-and-tell on shoe

lifts at last summer's convention? The most important thing that

Bobbi via her RSS daughter learned (and why Dr. H " requested "

that we hold this show-and-tell) is that almost all shoe lifts are

placed on the bottom of a shoe (in fact, the ortho websites I read

were saying that inside the shoe isn't good unless the shoe lift

goes the ENTIRE sole of the food at an EVEN amount -- is Connor's

like this? It needs to lift the entire foot an exact even amount,a

nd many of the inner lifts don't do this, they lift the heel more).

In addition, by placing the lift on the inside of the shoe and

lifting the foot, the foot now doesn't fit inside the shoe as

properly, and the shoe can rub at different places and the ankle can

have more difficulty.

Anyways, back to the shoe lift. The shoe lifts that are placed on

the bottom of the shoe are almost always stiff, one solid piece of

rubber or whatever. This makes it difficult for the child to

naturally bend their foot when walking. If you look at the bottom

of your child's other shoe, you will see that shoes usually have

cuts in them, at the bendable places. Well.... with a knife, you

can cut the shoe lift to " mimic " the bendable cuts on the opposite

shoe. If you get a good lift maker, they can even do this for you.

I hope this makes sense. If not, we'll ask Bobbi to do her show-and-

tell again this summer. Jennife

> Howdy Folks,

>

> I was away at a minister's retreat here in VA and had a wonderful

> time. We watched the Super Bowl together and had a hoot. Connor,

of

> course, being the only baby there, and being his adorable self,

> charmed the socks off the other pastors and many of the staff at

our

> resort.

>

> As many of you know, I am hosting a fund raiser for the Magic

> Foundation's SGA/RSS division. I asked earlier for hard copy

> pictures of your kids so that I can have a " family album " so to

speak

> at the dinner.

>

> FYI: The dinner is on March 19, 2004. Hopefully the bad weather

will

> be passed by then. However, to date, I have only received two

> adorable pictures. PLEASE PLEASE PLEASE PEOPLE, send me pictures

of

> your kids. This fund raiser benefits you all who are on this list

> serve in that all the wonderful research we can get our hot little

> hands on in part comes from fund raiser's like these. For the two

> families who have sent photo's, a thousand warm hugs sent to you

and

> your precious children!

>

> Onto other stuff. We had our orthotic appointment today. I am

glad

> to report that Connor's left leg is only off 3/8th of an inch.

The

> doc put a small lift into his shoe, Connor's foot stopped dragging

> and his hips straightened out. yippee!!!!! THe doc then said we

> wouldn't have to see him again until Connor is three and his bones

> (or in Connor's case, his ankles) fuse together more. AT this

age,

> he said they were little rubber bands and even with our syndrome,

> there isn't that much to correct - yet. Of course it is the wait

and

> see game, but it was so refreshing to go into an office where the

doc

> was pleasant, knowledgable about RSS and had a fast, cheap

solution

> that righted a minor problem now.

>

> O.k. alright. THe complete worry wart in me is waiting for the

> other shoe (or ankle) to drop, literally. Those adorable flat

feet

> you know?!!!!!! But all in all, I should be counting my blessings.

>

> Take Care to all and remember to send me the photo's!

>

>

> Mom to Graham 7; Cameron 4; Connor 16 months IUGR SGA/RSS?

Periactin

> & Zantac and a brand new orthotic that Connor loves.