Marla to Kent

[Guest guest]

Thanks Kent- I would like a dx for my own peace of mind. I've had so

many wrong ones in the past that my family thinks of me as the boy

who cried wolf. I appreciate the prayer, I'll take all I can get! I

do like my primary doctor very much, he listens and seems very

caring. I hope he will get my report from Pittsburgh MDA doc soon,

then we can set out a plan.

Marla

> Marla,

> let me add my welcome as well. although i don't know whether i

> qualify as officially part of the group or not. i am still

awaiting a

> diagnosis as well. the support and encourgaement from this group

has

> been great. but the information i get is almost as valuable. one

of

> the most useful things i have learned from this group and now from

my

> own experience is how useful it is to have a medical professional

on

> your side. i have found that i needed just one doc who whould take

> the time to listen to me, answer my questions and then refer me

when

> she didn't have answers. the ability to listen and the attitude to

> care are worth more than any specialized training. so i

> " re-discovered " a family doc in our local pratice who listed to me

in

> the past and made her my pcp. now i am waiting (and pushing) for

the

> specialists to forward all my test results to her. then she will

> refer me to the local MDA clinic and maybe even Mayo and/or

Cleveland

> for biopsy or biopsies, depending on our HMO. i have said a prayer

> for you just now (hope you don't mind) asking that you find or

> continue to use that one professional who will care for and work

with you.

>

> diagnosis and its implications are less of a problem for me, as i

am

> an older man with grown children, adequate life insurance and

symptoms

> that don't point to anything inherited. but i don't listen to

those

> who tell me i may never know what i have or that it isn't

important to

> know. a dx will give me an indication of what possible treatments

> might work and what the prognisis has been for people with the

same or

> a similar dx. these are my thoughts on this, since you asked.

> kent

>