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Re: I'm back with new questions

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hi nancy-

i am sorry that i can't answere your question, but i did check out

her pics and she is beautiful! also i saw that you typed that your

son is in iraq. i wanted to let you know you and your family are in

my thoughts and prayers. and i hope for a safe return for your son.

good luck with destiny, hope someone can answere your questions.

jodie

(nicholas-5 nonrss, christopher-3 22lbs 33 " rss, johnathon-6 m

nonrss)-

-- In RSS-Support , " " wrote:

> I haven't posted to this group in a long time, but I read

everything. My youngest daughter, Destiny has RSS but is on the mild

end of the spectrum, so we hven't had too many issues to face.

However her ped recently stated that Destiny has clonus, a reflex

problem that indicates damage to the motor neuron in the spinal

column. I knew the muscles in her left leg were hypertonic. I am a

massage therapist and I work on her legs every night at bedtime, but

I thought that it was due to her mild assymetry and her heavy (4days

a week) Taekwondo schedule.

> When I did an internet search for clonus I encountered sites for

multiple sclerosis. Does anyone have any information on this

condition? Her doctor didn't think it was harmful for her to

continue in Karate and of course there are more tests. They'll have

to wait until I find insurance I can afford, too rich for medicaid,

and self employed.

> I'm probably over-reacting but I keep seeing my little girl who

loves to spar and has wicked speed with her song-je-bohngs

(nunchuckas) confined to a wheelchair.

> Anyway, thanks for listening and by the way I figured out how to

post pictures if you would like to see my pint-size pugilist.

> , mom to Destiny RSS 5-in-a-minute and Fawn 27, Josh 21(in

Iraq) and 15

>

>

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