Re: not doing good on GH

[Guest guest]

- a couple things, from one parent to another.

First of all,I have heard from some parents on the GHD listserve

that some children do feel stinging with one type of a dilutant

versus another. I think you need to talk with your endo or pharmacy

about trying another dilutant to see if that helps.

Second of all, you aren't wiping with an alcohol pad, right? DON'T!

@!! That can make it sting.

Third, what size needle are you using. 31 gauge short needle is the

best. the higher the number the thinner/tinier the needle. some

doctors prescribe 29 gauge but kids can definitely feel the

difference.

OK, after changing all the above. Now you could ask and try using a

regular syringe and place it in the Eli Lilly injectease. (ask me

about this if you don't remember my prior emails).

When I use to be on the MAGIC GHD listserve, there were kids like

. I think the key is that you can NOT stop right now. The

fact is that he knows if he keeps screaming that eventually you will

quit. Eventually he will learn that sadly, this is not an option.

My husband used to remind me, what if was a diabetic -- we

would be giving her this same shot 4-5 times a day!!!! (diabetics

use the same size syringe!). So you know that it can't truly hurt

him that much (if you remove the issue of the dilutant and size of

needle). But he is scared and working himself up too much (again,

if you change the dilutant and needle and it still goes on).

Is he a sound sleeper? Could you give him the shot at night?

Although you don't want to screw up his sleep if he is freaking out

that much.

I know right now he is probably yelling all kinds of horrible things

at you, just smile and know that you are doing your best. Ignore

him. He is trying to push your buttons in any way he can so that

you will stop the shots. It is absolutely natural for him to do

this, OK?

Keep me posted.

> Hi all it seems that when you finally think their is help for our

> kids something goes wrong!! I give hugs to everyone with kids that

> are sick or hurting, I can say I feel the pain that my is

> going through, I am so stressed out about these G H shots!!! It

was a

> week yesterday and things are just awful, I am tired of talking to

> doctors tired of talking to therapist.... they all just kinda say

> the same thing try this try that.. they don't know how is

so

> strong willed and so defiant on top of all the sensory issues in

> which I am beginning to wonder if this is affecting him with the

> shots, several of you on here say their kids are adjusting well on

> the shot I am wondering if any of them are sensory like

and

> what to do? I feel so bad for him but I know I have to be strong I

> didn't know it was going to be like this!!! He is so hysterical

and

> emotional , I know it is different with every child but him just

> having RSS and everything else that he has been through surgeries

> being ocd and odd and sensory all mixed into one plus now this

> trama??? What am I going to do,he is going crazy if I just go in

the

> kitchen to get a drink he starts crying and running (that is where

we

> keep the shot supplies)I am wondering if it is stinging or burning

I

> have been talking to a lady and her son is very sensory and found

out

> that the same stuff I am using Nutropin A Q was really stinging

like

> a bee sting, I can't associate the difference cause he screams the

> whole time!! I do think that when I am injecting he does scream

> louder so I am wondering if it is the meds, Do any of you have

this

> problem? Do any of you know about the cool click air injection

> device No needle can this be changed? Is he old enough for this

> device, I hate for him to hurt escpecially if it is the med I

don't

> want to put anything extra on him if I don't have to.I just don't

> know if it to early to tell or not,I ask him if it hufts and he

says

> yes you meanie I don't like needles I try to explain to him that

it

> is so tiny he shouldn't feel it? UGH I need help!! The sticker

> chart doesn't help he could care less ,he doesn't like praise

> afterward he is just plain hateful and mean towards me this hurts

me

> so much!! We have to go for kindergarten shots next week and he

has

> to have 3 in his arms plus then when we get home later he isn't

going

> to like me after that day!!! I have tried the numming cream still

> screams I am just going out of my mind here seeing him like

this!!!!

> We are going to meeet with the lady and her son and she is going

to

> let her son give himself the shot with and see if this

> works... but I think in a actuallity he is just scared, I don't

like

> having to get on to him before hand but I have tried being nice

and

> rewards and I am just having to hold him down 3 of us and this is

so

> awful, either I try to prepare him before ,he goes crazy or I try

not

> saying anything until I have gotten it ready and I ask him to come

> here and he sees it he goes crazy..so either way NOTHING is

> working!!!!! I am wanting to try at night when he is asleep but I

> really don't want him to wake up and be scared to go to bed he

bangs

> his head at night and he knows when I come in to move him he wakes

> up, if I was to start poking him then he isn't going to trust me

to

> sleep!!UGH Help if you can I hope I have explained things well

to

> see if any of you have anything else to try. I don't know what to

do

> now and it's only been a week UGH I have to do this for years I

am

> going to lose all my nerves lol thanks to all and hugs to all

> 5 years!!!

[Guest guest]

Hi ,

Well, this reply is so late, I don't know if it's going to help you

or not (sorry for the delay - I'm trying to catch up on hundreds of

messages).

sounds a lot like Tyler! We started Tyler on GH in August

2003, when he was 4 1/2 years old. The first week was OK, then he

just lost it. We persevered like that for a couple more weeks with

hysteria and then decided to do it while he was asleep. This has

worked incredibly well!!! He doesn't even know he's having it done

and never talks about it in the morning. It avoids all anxiety on

his part, and we can get him to bed without the hassle of doing the

shot.

We found the best time to do it is when he's in a deep sleep about 1 -

1 1/2 hours after he falls asleep. If we go into his room, and he

doesn't seem like he's sleeping well, we wait and check on him

later. He rouses sometimes for a few seconds but always goes back to

sleep immediately and has no recollection in the morning.

I hope you've sorted something out by now since you wrote this over 5

weeks ago. Good luck.

(Tyler's mom - age 5; 104 cms - that's 10 cms growth in 10

months on GHT; 14 kgs)

[Guest guest]

--Hi it is o.k. I know it seems at times I can't even get on the

puter till about a week or so, well with and G H he is doing

wonderful!!! We switched the G H we were using and now he is doing

great, he tells us where he wants it and now he is helping do the

shot himself!!! I am so glad we decided to stop the nutropin AQ!!

Thanks for writting and helping me with the advice, I am so glad!! I

guess there all just so different we just got to keep trying to find

out how to help them!! In his case it was just changing the meds

thank goodness for this cause my nerves were getting pretty shot

struggling with him. Talk to you anytime when you can!! Hugs

- In RSS-

Support , " kmwnz " <wilkinsonz@x> wrote:

> Hi ,

>

> Well, this reply is so late, I don't know if it's going to help you

> or not (sorry for the delay - I'm trying to catch up on hundreds of

> messages).

>

> sounds a lot like Tyler! We started Tyler on GH in August

> 2003, when he was 4 1/2 years old. The first week was OK, then he

> just lost it. We persevered like that for a couple more weeks with

> hysteria and then decided to do it while he was asleep. This has

> worked incredibly well!!! He doesn't even know he's having it done

> and never talks about it in the morning. It avoids all anxiety on

> his part, and we can get him to bed without the hassle of doing the

> shot.

>

> We found the best time to do it is when he's in a deep sleep about

1 -

> 1 1/2 hours after he falls asleep. If we go into his room, and he

> doesn't seem like he's sleeping well, we wait and check on him

> later. He rouses sometimes for a few seconds but always goes back

to

> sleep immediately and has no recollection in the morning.

>

> I hope you've sorted something out by now since you wrote this over

5

> weeks ago. Good luck.

>

> (Tyler's mom - age 5; 104 cms - that's 10 cms growth in 10

> months on GHT; 14 kgs)