motor stimulation

[Guest guest]

Hi Everybody!

Our daughter Agata is 6,5 month old. She still doesn't keep her head when she

lies on her back or on her tummy. She has been rehabilitated NDT-Bobathis Method

and Sensorial Integration since third month of her life. In Poland we are not in

contact with any family who has a child with RSS, so we don't n know what

methods of rehabilitation they use. We would like to konw what methods you use ,

what kind of exercises you do with yor chidren and how quickly you achive a good

effect. Please tell usabout your experiences in that .

With kind regards

Dorota & Witek from Poland ( parents : Marta - 5 years old non RSS , Agata - 6,5

month ; 7,3 lbs; 22 inch)

[Guest guest]

Dear Withold,

It is hard for RSS babies to hold their heads up because their head

is large for their body. It happens, but it happens later. It also

seems that when they begin to reach their milestones, they come

quickly. For example, it takes a long time for them to get to where

they can lift their head and turn over and then only a month or two

later, they are scooting.

I think no one has answered you about what type of rehabilitation

they have used because we do not know! In United States, if your

baby is behind on milestones, a therapist from the State or the local

school district comes to your home and works with your child once a

week, but they do not necessarily explain the names of the methods

they use. What I remember about 's therapy when he was as

young as Agata is that the therapist brought bright, stimulating toys

which would make music and lights if he would reach out his hand and

push a button or pull a lever or bang something so that he would feel

happy for using his muscles. Our therapist also suggested that we

buy him blocks, a 'sorting' toy and a toy which allows the child to

stack things in order. We have one here that looks like larger and

smaller colored donuts or bagels that stack on a stem in order. Most

of the therapy I have seen used here is 'play-based' therapy, not

just exercising muscles.

I think that results are very different for each child. Much has to

do with how affected they are. If a child is very small and is

having problems getting enough calories, they are not able to develop

muscle very quickly. Others have less problems and grow quickly.

I think that it can never hurt a baby to be played with and talked to

and to have her arms and legs gently moved and massaged. Also, if

you just know that it will just take her a little longer to get to

her milestones, you will feel better. From what I have read on the

listserve, it is not unusual for our infants to be several months

behind and then catch up later. They crawl anywhere between 7 and 13

or 14 months. They walk anytime between 12 and 24 or 25 months.

Some may even be later than that.

I hope that you and Agata stay well.

Best regards,

Conny, Great-aunt to

> Hi Everybody!

> Our daughter Agata is 6,5 month old. She still doesn't keep her

head when she lies on her back or on her tummy. She has been

rehabilitated NDT-Bobathis Method and Sensorial Integration since

third month of her life. In Poland we are not in contact with any

family who has a child with RSS, so we don't n know what methods of

rehabilitation they use. We would like to konw what methods you use ,

what kind of exercises you do with yor chidren and how quickly you

achive a good effect. Please tell usabout your experiences in that .

>

> With kind regards

> Dorota & Witek from Poland ( parents : Marta - 5 years old non

RSS , Agata - 6,5 month ; 7,3 lbs; 22 inch)

>

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