Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 , How are you doing? JSchwartzo@... wrote: >Hi all, > >My docs have discovered that I have liver disease while trying to discover >why my white blood counts are so high. I have Hepatic Steatosis, a cyst, some >scarring and suspected hepticellular disease. They aren't sure of the >extent of the damage. I see a specialist next week. I do not have hepatitis, >diabetes or high cholesteral and I don't drink alcohol so those aren't the >causes. I just read an article that says lactic acidosis causes damage to the >mitochondria in liver cells. The article was relating to HIV/AIDS related drug >problems but came up when I put HS into the search engine. Does anyone else >have liver issues? Has anyone heard about mito causing liver problems? >Thanks to all who responded to my post last week. Its nice to have support. My >computer is out of commission and I'm on my daughter's which is very limited >so I'm having problems keeping up on posts but will try to catch up soon. >Hope everyone is doing well. Thanks in advance. > > S > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 The doctors were baffled when my 48 year old son passed away last year as his liver appeared to be that of an alcoholic liver but he only drank an occasionsal beer when he was with friends. They did list his main cause of death as kidney failure so this is very interesting to me. Dolores dgregori dgregori@...> wrote:, How are you doing? JSchwartzo@... wrote: >Hi all, > >My docs have discovered that I have liver disease while trying to discover >why my white blood counts are so high. I have Hepatic Steatosis, a cyst, some >scarring and suspected hepticellular disease. They aren't sure of the >extent of the damage. I see a specialist next week. I do not have hepatitis, >diabetes or high cholesteral and I don't drink alcohol so those aren't the >causes. I just read an article that says lactic acidosis causes damage to the >mitochondria in liver cells. The article was relating to HIV/AIDS related drug >problems but came up when I put HS into the search engine. Does anyone else >have liver issues? Has anyone heard about mito causing liver problems? >Thanks to all who responded to my post last week. Its nice to have support. My >computer is out of commission and I'm on my daughter's which is very limited >so I'm having problems keeping up on posts but will try to catch up soon. >Hope everyone is doing well. Thanks in advance. > > S > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2005 Report Share Posted September 26, 2005 Hi and other listmembers, Thank you so much for thinking of me. I so miss my friends on the list. My computer has been down and my daughter's computer is having major problems so I haven't been able to participate and am way behind on mail. Physically I've had a lot of problems this year that seem to have no answers. My labs have been all over the place (high CPK, WBC and up and down liver and kidney enzymes as well as anemia) and my doctors are stumped and are giving up on me. They give me this look of pity, shake their heads and send me home with no suggestions. Not good enough for me. I'm not giving up. I do have liver and kidney issues but we do not know the extent of them. I was supposed to have an exploratory procedure and got all the way into the OR but the anesthesiologist and gastro specialist refused to put me under after talking to my neuro. They say I'm too medically fragile for diagnostic procedures and that I will just have to live with the symptoms. I'm not able to take most medications whether due to allergies or doctors' orders so I'm pretty much learning to tolerate the symptoms cold turkey. I do cheat and pop a Motrin when the pain gets too bad (shame on me lol). My white blood count continues to go up and down with no source of infection and that has me worried. Its very frustrating. Everyone feels that I have something in addition to the mito. My neuro is leaning towards Schleroderma. I'm going to travel to Columbia Presbyterian at the end of October so maybe I'll get some answers there. I'm also having problems with my calve muscles. I failed my PT evaluation at my last clinic appointment and am having lots of calf pain after walking. I'm trying to ignore it but wow am I paying for my trip to Busch Gardens on Saturday. I am trying live my life as normally as possible and I know I overdue it sometimes but I want to enjoy life and do my favorite things as long as I can before this lousy disease takes its toll. I know that I'm a lot better off than many others and am very thankful for that. My daughter is doing well in school but has been sick a lot this year. She is seeing a great peds neuro here in Sarasota who trained at Columbia under Dr. DiMauro. I hope everyone is doing well. I'll try to participate more from now on. Thanks again for thinking of me. , tell Christie hello for me. I think of you guys every time I walk by my yarn octopus that she made for me. S Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2005 Report Share Posted September 26, 2005 I am sorry to hear that you are having so many problems. You might want to consider a scooter or wheelchair to see if the other problems improve when you aren't stressing your body so much. I have found that reducing the stress of working has helped, but now have to learn how to pace myself around the house as I am walking more which is good but causing some problems. I'm glad is doing well. laurie > Hi and other listmembers, > > Thank you so much for thinking of me. I so miss my friends on the list. My > computer has been down and my daughter's computer is having major problems > so I haven't been able to participate and am way behind on mail. Physically > I've had a lot of problems this year that seem to have no answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 Hi Jenn, I just got around to catching up on the board. I didn't realize you were struggling so much. I hope you get some answers. Be persistent ! Big hugs, bug Quote Link to comment Share on other sites More sharing options...
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