Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 , I was thinking of you and wondered how things were? Hugs, LILQT4U1984@... wrote: >Hi- > >As you know I have developed a severe cardiomyopathy over the last year. My >echo showed this last time that my EF has decreased from 40% to 20%. I've >become symptomatic since April with alot of shortness of breath, high resting heart >rate, tachycardia,etc. My cardiologist feels it's all caused by the mito and >that is can't be reversed or really treated. My PCP however feels it has to be >addressed and has just prescribed Lanoxin for me. He said that the Lanoxin >will help with symptoms but will not improve my heart or stop the progression of >the heart failure. I'm feeling scared as to what to do. I've been told I'm >not a candidate for either of the types of med's used for CHF (Beta Blockers, >Ace Inhibitors) as my blood pressure is very low. It was 76/48 at the doc and I >was nervous. Since I have POTS my BP completely bottoms out when I change >positions. I was wondering if any of you knew of a good cardio who would see me >that treats heart failure caused by and associated with mitochondrial disease. >I'm willing to travel as this is so urgent and pressing. > >Thanks so much! > > > > > > Quote Link to comment Share on other sites More sharing options...
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