Re: To G-tube or not to G-tube...

[Guest guest]

,

I am so sorry to hear about all the problems you've been having since your

fund raiser. Bi-polar disorder is hard to deal with, even under the best of

circumstances. To have a Dr mess up the meds is the ultimate in

mismanagement!

Like Alison, I am a fan of the g-tube. 's was place when he was 8.5

months of age, when he only weighed about 8#, and it has been a Godsend! He

was literally starving before our eyes.

Before the g-tube placement, actually preferred baby food to

formula. According to Dr H, the solids were heavier, and stayed down better,

reducing his reflux. After the triple procedure (fundo, pyloroplasty,

g-tube) was done, had more problems with aspiration, when we

attempted to feed him orally. Only recently have we been having a little

more luck.

Unlike Alison, I can say that we have experienced more complications with

's eating, but he had developed an oral aversion BEFORE the g-tube

was placed.

With the g-tube, we don't have to stress about eating orally, as we

know that he is getting enough calories without it, and we have been told

that even small amounts of food daily will keep the muscles working

correctly.

Have you considered going to a PPI (Prevacid or Prilosec) either alone or in

conjunction with the Zantac? You would give the PPI in the morning and the

Zantac at night. A while ago, it was discussed, here on the stie, that

Zantac can become ineffective with prolonged usage. His increased choking or

gagging might be a sign that his reflux isn't totally under control?

Good Luck,

Pat (g-ma to , RSS, 28 months, 20# 9oz, 30.1 " , Prevacid, Singulair,

GT)

[Guest guest]

I'll have to agree with Pat about the PPI and Zantac, Olivia's

only been on the Zantac since Dec. and it's already starting to

become ineffective. We've just upped her from 1.3ml to 1.5ml, if it

becomes inneffective again we'll be adding a PPI... just my 2 cents!

Leah, mom to Ash 9yrs and Olivia 4.5 yrs RSS

> ,

>

> I am so sorry to hear about all the problems you've been having

since your

> fund raiser. Bi-polar disorder is hard to deal with, even under

the best of

> circumstances. To have a Dr mess up the meds is the ultimate in

> mismanagement!

>

> Like Alison, I am a fan of the g-tube. 's was place when he

was 8.5

> months of age, when he only weighed about 8#, and it has been a

Godsend! He

> was literally starving before our eyes.

>

> Before the g-tube placement, actually preferred baby food

to

> formula. According to Dr H, the solids were heavier, and stayed

down better,

> reducing his reflux. After the triple procedure (fundo,

pyloroplasty,

> g-tube) was done, had more problems with aspiration, when

we

> attempted to feed him orally. Only recently have we been having a

little

> more luck.

>

> Unlike Alison, I can say that we have experienced more

complications with

> 's eating, but he had developed an oral aversion BEFORE

the g-tube

> was placed.

>

> With the g-tube, we don't have to stress about eating

orally, as we

> know that he is getting enough calories without it, and we have

been told

> that even small amounts of food daily will keep the muscles working

> correctly.

>

> Have you considered going to a PPI (Prevacid or Prilosec) either

alone or in

> conjunction with the Zantac? You would give the PPI in the morning

and the

> Zantac at night. A while ago, it was discussed, here on the stie,

that

> Zantac can become ineffective with prolonged usage. His increased

choking or

> gagging might be a sign that his reflux isn't totally under

control?

>

> Good Luck,

> Pat (g-ma to , RSS, 28 months, 20# 9oz, 30.1 " , Prevacid,

Singulair,

> GT)