Re: Kidney anomaly? - Jodie

[Guest guest]

Thanks a bunch for the feedback Jodie. I hope to get more

information after the doctor gets the radiologist report. They tried

to see his adrenal glands too, but I guess they couldn't.

The GI doctor is going to start with an absorption test, which means

I get to keep a diary for 3 days of all of his intake, and also

collect all of his " output " if you know what i mean...fun, huh?! I

guess that will determine if he is absorbing the right amount of

food/calories, etc. That will be our first step, and we'll go from

there.

The only time I'll have to worry about being sedated is when

he has surgery on his hypospadias later this year, but the doctor is

familiar with the issues surrounding RSS kids and anesthesia, so that

will help I hope!

AS for the endo...i'm hoping after our visit to the convention (and

hopefully with Dr. H) I can come back and schedule another visit and

share any other information/ideas with her. Otherwise she didn't

want to see him until he was older and if we are considering growth

hormone then.

Thanks again, stay well.