Re: Re: silent seizures

July 16, 2005

I have two brain tumors that were treated by gamma-knife at Research Hospital in

Kansas City. I had two nocturnal seizures and I am sure I jerked or something

as it wokr my husband up and he called my son ver to stay with my Mother (she

had Alzheumers and lived with us). I woke up and refused to go. My son

sved my life as I quit breathing and was turning ble before the rescue unit got

there. They told me I was fortunate that my son knew CPR and I told them he

didn't know the first thing about CPR and he said that he couldn't just let his

Mothe die before his eyes without trying to fo something, so he did what he had

seen on TV. My dilantin level was low so tey now have increased to 300mg daily

instead of 200mg one night and three hundred the next. Very confusing. I had t

write 2, 3, 2, 3, on my kitchn calenda r to keep up with it. Goodnight and

thanks for thr account of you family history. I'm going to print that off and

put it in my folder. Thanks and God Bless,

dDolores

Janet Sample thesamples@...> wrote:Dolores,

My mother was on anti seizure medication since about 1975 I think. She used to

" black out " and faint. Once it happened when we were at a grocery store. For

some reason my mother and father never pursued it further--my father worked for

the family insurance agency and did not have health insurance. The only

" seizure " she had was a week before she died. When they drove down to bring my

car to me after I got back from my Army Reserve trip to Germany her right arm

was shaking. We took her to the Emergency Room--that is another story--anyway

they went home that night and on Tuesday she was back in the hospital and

Thursday went into a coma from a massive seizure.

My sister had two of the type you think of with epilepsy where the whole body

shakes.

I myself have had the kind you describe where you loose time. I cannot of

course say for sure but can think of 3 times in my life where I think they have

happened. An MRI spectraposy in 1997 showed evidence of seizures. I can

remember in 1976 at 8th grade seeing spots and fainting, in 1989 during a USAR

training exercise doing the same, and once in 1991 I parked the car to go into a

store. I remember looking at the clock on my dash and thinking that the store

would be closing in 1 hour. Next thing I knew I kind of woke up. I looked at

the clock and the store would close in 1/2 hour. To this day I am not sure what

happened or if I really blacked out.

My 12 yr old son will do where he will all of a sudden just stare for a few

seconds to a minute or so. Then he will shake his head and say ha?

Anyway, even if you cannot remember the name for them--I probably could not,

silent seizures is a good name. Glad that all you lost was the food and that

the other problems were discovered.

Janet Sample

RE: appointments/drivers

At least I now have something moving. I think my surgery April first, then

the two biopsies and then bamding my hemorrhoids on June 23rd, then 's

birthday would have been July 2nd and he always continued his birthday thru the

fourth of July so that was a stressful time even though I tried for it not to

be.. Also, I just don't think for someone age 69 that I had enough recovery

time especially with me trying to take care of me. It's hard being alone, I've

found that out the last 11 months. My son Bill and my grandson Jeff do theit

best but the both have their own lives, especially Jeff three daughters seven

and under, it's hard. Bill drives back and forth to KC every day to ensure his

job as a trackman for Burlington Northern/Santa Fe. He started there when he

was 18 and he can't afford to quit and like he said he can't move to Pampa,

Texas and leave me so he's in a pickle and has been since 2002. I'm not sure

what the big word Dr. Welch used but then he said the

terminology " Silent Seizure " is as good an explanation as any. He said that

if these people that have an accident and say they blacked out and they don't

find evidence of a heart attack or stroke that if they did a neyrological workup

on them they nine times out of ten would fid that they jad a silent seozure. I

didn'd drop anything or like what I thought a seizure would be like (my seizures

were both nocturnal nut I was moving or thrashing as I woke my husband up both

times. Goodniight and God Bless,

Dolores

July 17, 2005

Dolores,

Well the 300 every day will be easier to keep track of, it must have been very

hard to do it the other way--stange how something bad brings good things.

Janet Sample

Re: Re: silent seizures

I have two brain tumors that were treated by gamma-knife at Research Hospital

in Kansas City. I had two nocturnal seizures and I am sure I jerked or

something as it wokr my husband up and he called my son ver to stay with my

Mother (she had Alzheumers and lived with us). I woke up and refused to go.

My son sved my life as I quit breathing and was turning ble before the

rescue unit got there. They told me I was fortunate that my son knew CPR and I

told them he didn't know the first thing about CPR and he said that he couldn't

just let his Mothe die before his eyes without trying to fo something, so he did

what he had seen on TV. My dilantin level was low so tey now have increased to

300mg daily instead of 200mg one night and three hundred the next. Very

confusing. I had t write 2, 3, 2, 3, on my kitchn calenda r to keep up with it.

Goodnight and thanks for thr account of you family history. I'm going to print

that off and put it in my folder. Thanks and God Bless,

dDolores

July 17, 2005

My Great-uncleGrover (he was the Nazarene Minister) always told me that the Lord

works in mysterious ways. At least now Dr, welch is sending a referraI to the

MDA clinic at KU and he thinks he can get me transportation the ee County

Cmmunity Health. I know, don't get my hopes up about immediate results at KU

but Dr. Welch (my neurologist) says the labs that he and Dr. Einspahr (he

specializes in hemetologist/genetics) have done all points to Mito and Dr. Baker

would /has bet his medical license that his records point to Mito. Who knows?

..

Take care and God Bless, Dolores