It's been a long time

[Guest guest]

Hi all,

I know it's been a very long time since you've heard form me, but I

still care about you all and think of you often.

Last September 2004, I had almost one of the scariest episodes. I

couldn't speak or understand lanugage. After the episode, I was

changed. I had trouble speaking, thinking and very flat affect. I

was like a zombie.

My doctor ordered a Brain mri and it only show minor changes. I just

started feeling like my old self 3 months ago. Thanks God!

I found a new neuro who was very nice and he sent me for physc.

testing and it show possible temporal lobe seizures and servere memory

problems. I think this is what's going on with me. These type of

seizures are very hard to pick up with eeg and it's hard to treat

them.

I also was DX with fibromyalgia and have been on meds that are helping

somewhat.

I also have very bad disk in my back that is causing the severe leg

pains.

The fatigue is still there very bad, and I still crash if I do

anything, so, I have curtailed my activities alot. I'm still not

brave enough or maybe it's pride, but I don't use a scooter. I rather

just not go out. I would need a van and maybe in the future I'll

afford to get one.

One postive thing has happened to me. I was very bitter about my

church, friends, and christians opinion of sick people. In my

searching for help, I was was lead to a web site called rest

ministries. After reading what other sick christians have been

through, I got such a healing of emotions and felt a release and

freedom.

I asked God (in a calm way for a change) why he allowed me to be sick

for so long with no answers. A week later I got an answer, Keepin'

The F.a.i.t.h Ministries- facing an illness thorugh hope. I'm putting

on a free gospel concert for people who are chronically ill and

handicap August 7, 2005. I've rented an American Legion all that

holds 500 people and I've advertised everywhere(from my computer) I've

been on TV and radio.

Please check out my web site: ktfministries.com

I'm also in the proscess of writing a book on suffering.

Who would figure this happening in my life.

I still have many medical challenges every day, but if I can help

someone to stay encouraged, my life has meaning.

I don't know what tomorrow holds , but I do know who holds my

tomorrows and I have strength in knowing that.

When I was at some of my very low times, family was there

for me. I know I must have drove you crazy with all my MANY questions

and Whinning and crying, but you guys was sooo patient with me and

caring. Thank you all so much.

I still don't know if I have mito, I feel that I do because of the

fatigue and crashes,, but I'll just continue to be patient until the

medical profession come up with something new for testing.

Please feel free to email me and I'll keep praying for us all.

God bless everybody.

Love,

Nemley

[Guest guest]

It is good to hear from you. I'm glad you are finding some peace and a

few answers.

Please keep it touch when you can.

laurie

> Hi all,

>

> I know it's been a very long time since you've heard form me, but I

> still care about you all and think of you often.

>

> Last September 2004, I had almost one of the scariest episodes. I

> couldn't speak or understand lanugage. After the episode, I was

> changed. I had trouble speaking, thinking and very flat affect. I

> was like a zombie.

>

> My doctor ordered a Brain mri and it only show minor changes. I just

> started feeling like my old self 3 months ago. Thanks God!

>

> I found a new neuro who was very nice and he sent me for physc.

> testing and it show possible temporal lobe seizures and servere memory

> problems. I think this is what's going on with me. These type of

> seizures are very hard to pick up with eeg and it's hard to treat

> them.

>

> I also was DX with fibromyalgia and have been on meds that are helping

> somewhat.

>

> I also have very bad disk in my back that is causing the severe leg

> pains.

>

> The fatigue is still there very bad, and I still crash if I do

> anything, so, I have curtailed my activities alot. I'm still not

> brave enough or maybe it's pride, but I don't use a scooter. I rather

> just not go out. I would need a van and maybe in the future I'll

> afford to get one.

>

> One postive thing has happened to me. I was very bitter about my

> church, friends, and christians opinion of sick people. In my

> searching for help, I was was lead to a web site called rest

> ministries. After reading what other sick christians have been

> through, I got such a healing of emotions and felt a release and

> freedom.

>

> I asked God (in a calm way for a change) why he allowed me to be sick

> for so long with no answers. A week later I got an answer, Keepin'

> The F.a.i.t.h Ministries- facing an illness thorugh hope. I'm putting

> on a free gospel concert for people who are chronically ill and

> handicap August 7, 2005. I've rented an American Legion all that

> holds 500 people and I've advertised everywhere(from my computer) I've

> been on TV and radio.

>

> Please check out my web site: ktfministries.com

>

> I'm also in the proscess of writing a book on suffering.

>

> Who would figure this happening in my life.

>

> I still have many medical challenges every day, but if I can help

> someone to stay encouraged, my life has meaning.

>

> I don't know what tomorrow holds , but I do know who holds my

> tomorrows and I have strength in knowing that.

>

> When I was at some of my very low times, family was there

> for me. I know I must have drove you crazy with all my MANY questions

> and Whinning and crying, but you guys was sooo patient with me and

> caring. Thank you all so much.

>

> I still don't know if I have mito, I feel that I do because of the

> fatigue and crashes,, but I'll just continue to be patient until the

> medical profession come up with something new for testing.

>

> Please feel free to email me and I'll keep praying for us all.

>

> God bless everybody.

>

> Love,

>

> Nemley

>

>

>

>

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>