optic atrophy and vit b 12

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Those of you taking vitamin B 12 should be warned that it is contradicted in

optic atrophy.

Contraindications Documented hypersensitivity; Leber

disease, ie, hereditary optic nerve atrophy (patients

may experience severe and swift optic atrophy when

treated with vitamin B-12); severe megaloblastic

anemia (hypokalemia and sudden death may occur)

http://www.emedic00ine.com/NEURO/topic439.htm

http://www.emedicine.com/neuro/topic278.htm

My doctor prescribed a high dose but I had taken it ior 10 days when I came

across this fact.

When I apprised Dr . about this new finding, he told me to discontinue it.

Just shows that docs don’t know everything

Joanne Kocourek servedogmom@...> wrote: Does anyone have a diagnosis of

retinitis pigmentosa? What degree of progression have you expereinced? Where

the visual changes slow or rapidly progressive? Do you know of any treatment

that might slow the progression (other than the mito cocktail)?

lies has had several (3) small areas of pigment for several years, but

over the past three months three physicians (including Dr. Cohen) have commented

on the changes in her retinal exam. I suspect the changes are significant

because he asked for a repeat neuro-ophthamology evaluation and the other

physicians asked when her next eye appointment was scheduled. Honestly, it

isn't because of insurance changes/issues. But, I beginning to doubt that

decision, and wonder if we really need to pay out of pocket to have her

evaluated sooner rather than later. If there is absolutely nothing that can be

done to slow or reverse the process, I don't know that it truly matters.

lies even made the comment that she's in no hurry to be told she is going

blind and there is nothing that can be done. On her last exam, her left eye was

unaffected. I know that could change but I feel like there is still hope at

least some vision may be spared.

What has your expereince been? At what point should I approach ECAD about

adding guide dog type skills to Stitches " abilities " . I knwo Stitch won't mind,

but timing could be an issue.

Joanne Kocourek (mom to , lies, and )

visit us at: http://www.caringbridge.org/il/annakris