Kearns--->You are AWESOME!

[Guest guest]

Hi ,

oh man. I can't tell you how excited I am for all you are doing. I

can hardly sit stillhere as I type this. I don't know. There is

just something so moving about waht you are doing. I want so bad to

do a fundraiser, too. I aslo have been wanting to educate the

public around here on and RSS. Can you email me privately and

let me know how you went about doing this??? rollison@ core.com,

without the space of course! ) I would love for people to know

more about this syndrome. And, you can bet I will be sending you a

picture of !! I think it would be very impactful to tell their

ages and their weights. For example, is 20 months old the

23rd and only weighs 14 lbs. 5 oz. That'll get em going!

I can't tell you how awesome you are!!

Jodi R.

's mommy