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I can feel some of your pain and confusion as my Mother had possible Alzheimers

and lived with my husband and me for five years before she passed away. She

virtually tried to " evict " me from my own home on various occasions then after a

stay in the hospital she when she was in a nursing home for a short while she

pinched, pulled the nurses/aides hair cursed them, it was horrible for me to see

her like that and take her verbal attacks before she had to be hospitalized and

couldn't return home to us. She passed away in 2001 and my DX was Parkinsons at

that time and wasn't ?? until December, 2004 when Mito came into the picture and

taken off all the Parkinsons meds January, 2005. I myself have severe

neuromuscular damage to my right leg but recently moved to an Independent living

setting due to falling four times and having one seizure all while I was alone.

At any rate no one ?? Mother's DX as my Grandmother was said to have died from

harding arteries to the brain around

45 years ago and she was symptomatic of Alzheimer's??

doyoucook@... wrote: Sorry I have not written in a while but I do

see all the emails.

Dave recently has been seeing things not there also people, he says I'm playing

mind tricks on him. he can reason that what I ell him but at the same time he

does not believe me.

has any one else had this problem and what did you do? as the caregiver side of

this disease.

I gave him one extra ativan and 2 Tylenol PM to help him sleep last night but

today he feels fuzzy.

Which is much better than coming after me with hatred.

Kim

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Kim

I'm sorry you are having to deal with this. I have not experienced

this, but wanted to let you know that you and Dave are in my thoughts.

It sounds like it might be time to have the doc re-evaluate him and

his meds. I hope you have someone who can spend time with him, so you

can get away and have some time for yourself away from the stress.

Hugs,

laurie

>

>

>

>

>

>

> Sorry I have not written in a while but I do see all the emails.

>

> Dave recently has been seeing things not there also people, he says I'm

> playing mind tricks on him. he can reason that what I ell him but at the

> same time he does not believe me.

>

> has any one else had this problem and what did you do? as the caregiver

> side of this disease.

>

> I gave him one extra ativan and 2 Tylenol PM to help him sleep last night

> but today he feels fuzzy.

>

> Which is much better than coming after me with hatred.

>

> Kim

>

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My daughter had this problem. In fact, she had hallucinations and at

times was psychotic. We had to use antipsychotics for awhile. They

were marginally effective. Her dementia became so severe she did not

speak, did not recognize us, had to be fed, bathed, dressed and moved.

We thought we were about to lose her. Then on a lark her neurologist

started her on Aricept and we saw some improvement. He then added

Namenda. She is talking, watching television, feeding herself, putting

25 piece puzzles together and knows who we are every day. She is still

doubly incontinent, has to be bathed and dressed and fatigues very

easily. She also sleeps a lot. We have been delighted with the

improvement we have seen. I have found nothing in the literature about

the use of these Alzheimer's drugs for patients with mito. Also my

daughter has only a clinical diagnosis of mito.

Shelby, mother of , 32 yr.

> Sorry I have not written in a while but I do see all the emails.

>

> Dave recently has been seeing things not there also people, he says

> I'm playing mind tricks on him. he can reason that what I ell him but

> at the same time he does not believe me.

>

> has any one else had this problem and what did you do? as the

> caregiver side of this disease.

>

> I gave him one extra ativan and 2 Tylenol PM to help him sleep last

> night but today he feels fuzzy.

>

> Which is much better than coming after me with hatred.

>

> Kim

>

>

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Kim,

Laurie had a good suggestion regarding the doctor visit and looking

at his meds. My mom went through the same type of thing with my dad

when he was deteriorating from Parkinsons disease. Luckily she

thought to question one of the newer meds that he was put on for

Parkinsons. Once that med was changed the behavior (seeing things)

stopped.

Maggie

>

> Sorry I have not written in a while but I do see all the emails.

>

> Dave recently has been seeing things not there also people, he

says I'm playing mind tricks on him. he can reason that what I ell

him but at the same time he does not believe me.

>

> has any one else had this problem and what did you do? as the

caregiver side of this disease.

>

> I gave him one extra ativan and 2 Tylenol PM to help him sleep

last night but today he feels fuzzy.

>

> Which is much better than coming after me with hatred.

>

> Kim

>

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