hello from a new member

[Guest guest]

Hello, my name is ... I am still in the throes of final

diagnosis, but it is apparently mild rheumatoid arthritis overlap with

mitochondrial myopathy. For me it has been adult onset, with a slow

progression.

Now in my forties, i use assistive devices for any distance

travelling, and use arm crutches for stability for short distances. I

have a fair amount of muscle pain but medication is handling it, along

with yoga and water therapy.

I love the idea of an adult only list! I have been totally reluctant

to post in other lists, as the people there are consumed (rightly!)

with the urgent needs of their little ones ...

I am luckily a software suport person with a computer company, and

work from my home although i do travel occasionally (both by car and

flying). I have found it frustrating to get assistance, advice and

support when one has the ability to walk still but cannot walk any

distance at all, seems everyone expects one to be either able or

wheelchair bound! My life demands that i keep up with the world, and i

feel sometimes i am reinventing the wheel as i struggle to make good

choices with equipment and choices about when to just " do something "

and when to say " i cannot " ...

To complete the " bio " (forgive its length) i am married with 2

children (aged 9 and 12 and healthy, thank goodness) ...

thank you for listening