Re: Central apnea and breathing support

[Guest guest]

lies uses a Respironics Synchrony system which is

extremely quiet. To reduce the risk of infections, we

use a Fischer Pykal for humidity vs blow over. The FP

is also much quieter than blow over. lies and TOm

use the Nasal-aire nasal pillows instead os the rigid

nasal pillows or any of the masks.

> Any ideas about the quietest BiPAPs and CPAPs?

> What

> about comfortable air pillows, etc.

Joanne Kocourek (mom to , lies, and )

visit us at: http://www.caringbridge.org/il/annakris

[Guest guest]

,

I use a bi-pap. I use the Nasal-Aire for my air pillows. I

tried a couple of masks through the years and with daily facial drooping

(in different places), I never had a good seal. The nasal-aire has

worked great for me.

Smiles,

a

On Wed, 2 Nov 2005 20:32:16 -0800 (PST) Van Verst

tbnkatie@...> writes:

Any of the adults here have central apnea? I recently

had a sleep study and it found that I have upper

respiratory resistance syndrome with mild sleep

fragmentation. I awakened 86 times with this. I also

had one episode of central apnea and awakened with

this. I desatted to 89%. They did an MSLT which

showed moderate hypersomnolence. The nurse reported

the hypersomnolence to me in a rather hushed voice. I

said, " so you're saying I'm tired, right? " The PCP

wants me to see a pulmonologist. He's also

recommending BiPAP and ritalin. I think I'd like to

be aggressive with the BiPAP but am not interested in

the ritalin.

Any ideas about the quietest BiPAPs and CPAPs? What

about comfortable air pillows, etc. Don't think I'd

be compliant with a mask. I need a quiet machine

because hubby and I have to hear 's alarms.

[Guest guest]

I have both obstuctive and sleep apnea and have been on CPAP for over

4 years. My neuro wants me to have a sleep study once a year to make

sure my pressure settings are correct. I started at 9, then went to 11

after three years and am now at 17 after a year. I am now on C-flex

which is somewhat similar to biPAP. I use a respironics which is

quiet, but now as quiet at 17 than it was at 11. I use a full face

mask because I breath through my mouth at times. I am having trouble

maintaining a good seal with increased pressure. I see a pulmonologist

who is also my sleep doc.

Good luck and don't get discouraged. It takes time to get everything

but together and get use to it.

laurie

> Any of the adults here have central apnea? I recently

> had a sleep study and it found that I have upper

> respiratory resistance syndrome with mild sleep

> fragmentation. I awakened 86 times with this. I also

> had one episode of central apnea and awakened with

> this. I desatted to 89%. They did an MSLT which

> showed moderate hypersomnolence. The nurse reported

> the hypersomnolence to me in a rather hushed voice. I

> said, " so you're saying I'm tired, right? " The PCP

> wants me to see a pulmonologist. He's also

> recommending BiPAP and ritalin. I think I'd like to

> be aggressive with the BiPAP but am not interested in

> the ritalin.

>

> Any ideas about the quietest BiPAPs and CPAPs? What

> about comfortable air pillows, etc. Don't think I'd

> be compliant with a mask. I need a quiet machine

> because hubby and I have to hear 's alarms.Any of

> the adults here have central apnea? I recently had a

> sleep study and it found that I have upper respiratory

> resistance syndrome with mild sleep fragmentation. I

> awakened 86 times with this. I also had one episode of

> central apnea and awakened with this. I desatted to

> 89%. They did an MSLT which showed moderate

> hypersomnolence. The nurse reported the

> hypersomnolence to me in a rather hushed voice. I

> said, " so you're saying I'm tired, right? " The PCP

> wants me to see a pulmonologist. He's also

> recommending BiPAP and ritalin. I think I'd like to

> be aggressive with the BiPAP but am not interested in

> the ritalin.

>

> Any ideas about the quietest BiPAPs and CPAPs? What

> about comfortable air pillows, etc. Don't think I'd

> be compliant with a mask. I need a quiet machine

> because hubby and I have to hear 's alarms.

>

>

>

> Mom to the two best kids in the world!

> http://www.caringbridge.org/visit/thomasandkatie

>

> __________________________________________________

>

[Guest guest]

I researched ritalin as part of my graduate studies, and I'd say

avoid it (or really any " stimulants " ) if possible. I personally

think the number of cases ritalin actually helps is outweighed by the

people who have trouble with it If anyone or their loved ones is

on Ritalin or similar, I would suggest looking into Attenade, a

chirally pure version of ritalin (only containing the active form,

not a mix of active and inactive forms of the drug), to help minimize

the potential for side effects.

Regarding " hypersomnolence " , I was told that I have theta or slow

waves on my EEG when awake, which only should appear when sleeping,

so they asked me if I was tired too (duh!).

Take care,

RH

>

> Any of the adults here have central apnea? I recently

> had a sleep study and it found that I have upper

> respiratory resistance syndrome with mild sleep

> fragmentation. I awakened 86 times with this. I also

> had one episode of central apnea and awakened with

> this. I desatted to 89%. They did an MSLT which

> showed moderate hypersomnolence. The nurse reported

> the hypersomnolence to me in a rather hushed voice. I

> said, " so you're saying I'm tired, right? " The PCP

> wants me to see a pulmonologist. He's also

> recommending BiPAP and ritalin. I think I'd like to

> be aggressive with the BiPAP but am not interested in

> the ritalin.

>

> Any ideas about the quietest BiPAPs and CPAPs? What

> about comfortable air pillows, etc. Don't think I'd

> be compliant with a mask. I need a quiet machine

> because hubby and I have to hear 's alarms.Any of

> the adults here have central apnea? I recently had a

> sleep study and it found that I have upper respiratory

> resistance syndrome with mild sleep fragmentation. I

> awakened 86 times with this. I also had one episode of

> central apnea and awakened with this. I desatted to

> 89%. They did an MSLT which showed moderate

> hypersomnolence. The nurse reported the

> hypersomnolence to me in a rather hushed voice. I

> said, " so you're saying I'm tired, right? " The PCP

> wants me to see a pulmonologist. He's also

> recommending BiPAP and ritalin. I think I'd like to

> be aggressive with the BiPAP but am not interested in

> the ritalin.

>

> Any ideas about the quietest BiPAPs and CPAPs? What

> about comfortable air pillows, etc. Don't think I'd

> be compliant with a mask. I need a quiet machine

> because hubby and I have to hear 's alarms.

>

>

>

> Mom to the two best kids in the world!

> http://www.caringbridge.org/visit/thomasandkatie

>

> __________________________________________________

>

[Guest guest]

I've decided that I just don't want to be kept awake

with stimulants. I'm not convinced that I don't have

ADHD so I wonder if it'd make me sleep anyway.

Caffeine makes me sleepy.

Mom to the two best kids in the world!

http://www.caringbridge.org/visit/thomasandkatie

__________________________________

Yahoo! FareChase: Search multiple travel sites in one click.

http://farechase.yahoo.com

[Guest guest]

Hi a,

Did you have a problem with your nose getting dry when you first

started to use the Nasal-Aire pillows? And if so what did you do to

help that problem? What about your throat getting dry while using the

b-pap? Any suggestions??? The reason I ask is that my husband Kim is

having a very difficult time with his nose being dry. He has been on

all the other types of masks, but he pulls them off in the middle of

the night. Thanks!!

Hugs,

Ann-Marie

At 08:06 AM 11/3/2005, you wrote:

>,

> I use a bi-pap. I use the Nasal-Aire for my air pillows. I

>tried a couple of masks through the years and with daily facial drooping

>(in different places), I never had a good seal. The nasal-aire has

>worked great for me.

>

>Smiles,

>a

>

>On Wed, 2

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[Guest guest]

Hi Ann Marie,

lies uses heated humidity via a Fischer Pykel

system using sterile water. You can adjust the amount

of humidification with this system. Both girls also

use normal saline nasal spray four times/day.

--- Ann-Marie Mc peetie@...> wrote:

>

> Hi a,

>

> Did you have a problem with your nose getting dry

> when you first

> started to use the Nasal-Aire pillows? And if so

> what did you do to

> help that problem? What about your throat getting

> dry while using the

> b-pap? Any suggestions??? The reason I ask is that

> my husband Kim is

> having a very difficult time with his nose being

> dry. He has been on

> all the other types of masks, but he pulls them off

> in the middle of

> the night. Thanks!!

>

> Hugs,

> Ann-Marie

>

>

>

> At 08:06 AM 11/3/2005, you wrote:

> >,

> > I use a bi-pap. I use the Nasal-Aire for

> my air pillows. I

> >tried a couple of masks through the years and with

> daily facial drooping

> >(in different places), I never had a good seal.

> The nasal-aire has

> >worked great for me.

> >

> >Smiles,

> >a

> >

> >On Wed, 2

>

>

> --

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.1.362 / Virus Database: 267.12.8/161 -

> Release Date: 11/3/2005

>

>

>

Joanne Kocourek (mom to , lies, and )

visit us at: http://www.caringbridge.org/il/annakris

[Guest guest]

Thank you Joanne

My husband used the Normal Saline spray but not that many times

during the day. Maybe if he uses it more often during the day it might help.

What is a Fischer Pykel system? Is there a website for that? Do you

have to purchase it or do the Home Health Care companies carry this?

Thanks for your help!! Because of the problems he is having he isn't

using it all night long like he should, which is resulting in him

being extremely tired during the day.

Hugs,

Ann-Marie

At 12:19 AM 11/4/2005, you wrote:

>Hi Ann Marie,

>

>lies uses heated humidity via a Fischer Pykel

>system using sterile water. You can adjust the amount

>of humidification with this system. Both girls also

>use normal saline nasal spray four times/day.

--

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.1.362 / Virus Database: 267.12.8/161 - Release Date: 11/3/2005

[Guest guest]

I had extreme daytime sleepiness during the day when I had my first

sleep study. That was done as part of my sleep study. Once I was on

CPAP, it went away, because I was getting better sleep. It might make

a difference for you as well.

laurie

> I've decided that I just don't want to be kept awake

> with stimulants. I'm not convinced that I don't have

> ADHD so I wonder if it'd make me sleep anyway.

> Caffeine makes me sleepy.

>

>

>

>

>

> Mom to the two best kids in the world!

> http://www.caringbridge.org/visit/thomasandkatie

>

>

>

> __________________________________

> Yahoo! FareChase: Search multiple travel sites in one click.

> http://farechase.yahoo.com

>

>

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[Guest guest]

Ann-Marie,

I also use the saline nasal spray, during the day. My nose and

throat get dry every so often, but not enough that my pulmo wants to

change anything. I did notice that I had more dryness when I first

started using the Nasal-Aire pillows, but that has decreased a lot over

time.

How have you been feeling?

Smiles,

a

On Fri, 04 Nov 2005 00:03:13 -0500 Ann-Marie Mc peetie@...>

writes:

Hi a,

Did you have a problem with your nose getting dry when you first

started to use the Nasal-Aire pillows? And if so what did you do to

help that problem? What about your throat getting dry while using the

b-pap? Any suggestions??? The reason I ask is that my husband Kim is

having a very difficult time with his nose being dry. He has been on

all the other types of masks, but he pulls them off in the middle of

the night. Thanks!!

Hugs,

Ann-Marie