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I am new here and have lots of questions but hope to answer most of

them by reading. How glad I am to find this forum! Not much

available online for adults with mito I am finding. I have double

vision about half of the time so sometimes reading is tough but will

try. I, like others as I have read so far, was diagnosed with MS

first and now it is looking like mitochondrial disease. I haven't

had a muscle biopsy yet but am taking the supplements and they seem

to be helping.

I am wondering if any of you are on any stimulants? Since the MS

diagnosis I have been taking adderral and provigil, two stimulants.

If I don't take them I will just sleep all day. When I used to read

about MS it was very common to be on these meds, but I haven't read

any stories of mito people on them. I also take Mestinon for

strength and topomax for my headaches.

If you have tried or or taking stimulants please tell me what and how

they work for you? Sometimes I wonder if they cause me more problems

then they are worth and now that I have read about heart problems

with mito, I am concerned. However, I don't know what I would do

without them. Like I said earlier, I would just sleep all day.

Thank you in advance.

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