Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Hi Shayna - good to hear from you - have you actually had your hysterectomy yet? I know you were asking for feedback a little while back. If you've had it you sure bounced back quickly! Thks for your response - an increase in CoQ10 is certainly one of the things we will try. pamela Re: Daughter pelvic pain (gone) depression (new) Hi Pamela, The news about Penny's pelvic pain is wonderful. (I'll update the group on my hysterectomy results soon.) But I'm so sorry to hear about the depression. It's truly an awful thing. I don't have any advice or knowledge that would relate to the depression. I just want to comment that I'm taking a much higher dose of CoQ10. I take 1000 mg/day. It's increased my energy. I built up to this dose gradually. With each increase, I got a little hyper, but then I adapted. And I only take it with breakfast and lunch so it doesn't interfere with sleep. I have no idea if increasing Penny's dose would help (somehow I doubt it's the root cause of the problem), but depression usually is a low-energy state so I wonder if extra energy could help at least a bit. All best wishes to both of you, Shayna > > Hi everyone - asking for your thoughts again for my daughter (22). > > First an update if you remember her last problem was acute pelvic pain which was thought to be gynaecological as it seemed to come before and into her period. Laparoscopy showed nothing significant. BC pill was tried continuously and it made it much worse so after several dashes to emergency was finally ceased. The pain was helped only by heat. It was unrelenting and I think broke her down as she started blacking out (dx for this was neurocardiogenic vasovagal syncope which some of you had mentioned already). Anyway we started her on Magnesium Orotate 800 mg per day 2-3 months ago and amazingly the pain seems to have gone away! Quite a miracle, so it must have been some sort of cramping or spasm. As part of her mito investigations she has been to a gastroenterologist who is checking her for dysmotility and he thinks that it might be related ie spasm of the colon triggered by hormonal changes. Well hopefully it is gone and she is not willing to stop the Mg Orotate to find out ! > > With one problem gone another has started and that is severe and frightening depression which is so unlike how she has been in the past. I believe she is in crisis the only thing I am not sure about is whether it is just a direct result of feeling low about not being able to perform over the last few years (she is constantly fatigued and sick, glands up etc) and this affected school years and further study in photography . Or perhaps there is a biochemical reason ie an energy crisis between the mitochondria and the brain (perhaps related to all the pain she has been experiencing over the last year) . I feel the latter must be closer or maybe its a combination. Penny has been on CoQ10 300 mg for a few months now and just started B2 - yet to try Carnitine but that is next. Any other ideas and has anyone had anything similar? She is not really responding that well to SSRI antidepressants at least yet (after a few weeks on them) they are not enough to stop some dramatic episodes of sudden diving into sobbing, shaking, episodes where she is terrified she might hurt herself, temporary inability to function etc. Other times she is quite happy and normal. I feel it has to be related to the mito. My thinking is that no matter what you throw at someone they're not going to work if the energy pathways are not there - does that make sense? I'm not sure whether she needs more rest or more exercise - for sure we always strive for better nutrition. Any ideas or experiences would be appreciated. Would be good to understand the processes like some of you biochemistry wizards .. Pamela (Melas) about Penny (also Melas) > > > > Quote Link to comment Share on other sites More sharing options...
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