Guest guest Posted February 8, 2004 Report Share Posted February 8, 2004 hi, i'm debbie codd, i have a son, ellis who is 8. over the past two years ellis has been on growth hormone. though he was tested with a " normal " level of GH, the GH shots helped him " catch up " a bit. (he was born 1lb. 14oz., and only 13 " long.) this past year has been plagued with peeing in his pants (without his knowledge) and toe walking. i'd remembered someone telling me to have him checked out if the toe walking became constant, so we went to an orthopedic doc in concord, nh. he found a slight curve to ellis' spine. i mentioned the peeing to him and he said that with the toe walking, there could be something going on and that we need a MRI. the MRI indicated that his spinal cord is abnormally low and is called a " tethered cord " . the pediatric neurosurgeon, at Dartmoth-Hitchcock hosp. in lebenon, nh, told us that he has to have his spinal cord operated on. the " string " which holds the cord in place, is so tight, it's pulling his spine down into the lumbar region. if untreated his feet will continue to deform, scoliosis will set in and the bladder problems will become worse, and be irreversable. it also causes numbness in the lower extremities, which he's told us he has! i wanted to write to 1. let people know about this and to add it to your list of things to look out for, and 2. has anyone run into a tethered cord or some of the symptoms in your rss child? thanks, debbie Quote Link to comment Share on other sites More sharing options...
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