Re: Biopsy on Friday- Anne Marie

[Guest guest]

I stopped supplements 2 weeks before my biopsy and it came back normal. I

was told that I would have had to be off of the supplements for 1-2 months

prior to the biopsy if I wanted them not to effect results. Dr Shoffner said

that

I didn't need to be off of them at all, but since that time Dr Korson is

telling his patients to stop taking their supplements one month before the

biopsies. He said this based this on me and one other patient b/c he felt so

strongly that we had mito and both of us had normal biopsies on supplements,

that

he felt that all patients should go off of supplements beforehand if

possible.

My biopsy may have been normal without the supplements too, so I have no

idea if that impacted how the results came out. But, if I ever had another

biopsy I would try to stay off of the supplements as long as I could beforehand

to

take out that variable.

Malisa

In a message dated 9/1/2005 8:56:35 PM Eastern Standard Time,

rakshasis@... writes:

I was told to stop supplements, UNLESS stopping them would impact my

health too strongly. I did not stop any supplements, and my muscle

biopsy showed no Complex I activity.

Although I've heard frequently that doctors say to stop supplements,

I haven't heard anyone who said they thought their muscle biopsy was

normal because they stayed on supplements (anyone with a story like

that?).

Take care,

RH

--- In , " Marla " wrote:

>

> >

> > >I'm sure I may not be familiar to some, sorry I haven't been on

> here

> > >much, but you all know how that goes. My eyes just can't see the

> type.

> > >I have my 2nd muscle biopsy on Friday in Pittsburgh, PA. I'm

> hoping

> > >this will help with a final diagonosis. I started onthe mito

> cocktail

> > >after I saw the MDA doc, it has really improved my muscle

> strength,

> > >although I still can't walk very far. Thanks to those who gave

> their

> > >opinions about biopsy when I first joined, it was a great help.

> > >Marla

> > >

> > >

> > >

> > >

> > >Medical advice, information, opinions, data and statements

> contained

> > >herein are not necessarily those of the list moderators. The

> author

> > >of this e mail is entirely responsible for its content. List

> members

> > >are reminded of their responsibility to evaluate the content of

> the

> > >postings and consult with their physicians regarding changes in

> > >their own treatment.

> > >

> > >Personal attacks are not permitted on the list and anyone who

> sends

> > >one is automatically moderated or removed depending on the

> severity

> > >of the attack.

> > >

> > >

> > >

> > >

> > >

[Guest guest]

>

> >I'm sure I may not be familiar to some, sorry I haven't been on

here

> >much, but you all know how that goes. My eyes just can't see the

type.

> >I have my 2nd muscle biopsy on Friday in Pittsburgh, PA. I'm

hoping

> >this will help with a final diagonosis. I started onthe mito

cocktail

> >after I saw the MDA doc, it has really improved my muscle

strength,

> >although I still can't walk very far. Thanks to those who gave

their

> >opinions about biopsy when I first joined, it was a great help.

> >Marla

> >

> >

> >

> >

> >Medical advice, information, opinions, data and statements

contained

> >herein are not necessarily those of the list moderators. The

author

> >of this e mail is entirely responsible for its content. List

members

> >are reminded of their responsibility to evaluate the content of

the

> >postings and consult with their physicians regarding changes in

> >their own treatment.

> >

> >Personal attacks are not permitted on the list and anyone who

sends

> >one is automatically moderated or removed depending on the

severity

> >of the attack.

> >

> >

> >

> >

> >

[Guest guest]

I was told to stop supplements, UNLESS stopping them would impact my

health too strongly. I did not stop any supplements, and my muscle

biopsy showed no Complex I activity.

Although I've heard frequently that doctors say to stop supplements,

I haven't heard anyone who said they thought their muscle biopsy was

normal because they stayed on supplements (anyone with a story like

that?).

Take care,

RH

> >

> > >I'm sure I may not be familiar to some, sorry I haven't been on

> here

> > >much, but you all know how that goes. My eyes just can't see the

> type.

> > >I have my 2nd muscle biopsy on Friday in Pittsburgh, PA. I'm

> hoping

> > >this will help with a final diagonosis. I started onthe mito

> cocktail

> > >after I saw the MDA doc, it has really improved my muscle

> strength,

> > >although I still can't walk very far. Thanks to those who gave

> their

> > >opinions about biopsy when I first joined, it was a great help.

> > >Marla

> > >

> > >

> > >

> > >

> > >Medical advice, information, opinions, data and statements

> contained

> > >herein are not necessarily those of the list moderators. The

> author

> > >of this e mail is entirely responsible for its content. List

> members

> > >are reminded of their responsibility to evaluate the content of

> the

> > >postings and consult with their physicians regarding changes in

> > >their own treatment.

> > >

> > >Personal attacks are not permitted on the list and anyone who

> sends

> > >one is automatically moderated or removed depending on the

> severity

> > >of the attack.

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I didn't stop the supplements before my biopsy and my biopsy was

normal - except for low CoQ10 in my muscle tissue. I would have

thought the low CoQ10 would have effected the complex activity.

Maggie

> I was told to stop supplements, UNLESS stopping them would impact my

> health too strongly. I did not stop any supplements, and my muscle

> biopsy showed no Complex I activity.

>

> Although I've heard frequently that doctors say to stop supplements,

> I haven't heard anyone who said they thought their muscle biopsy was

> normal because they stayed on supplements (anyone with a story like

> that?).

>

> Take care,

> RH

>