Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 Hi Marla, I am writing this in a larger font in hopes that you will be able to read this. I wish you the best of luck this Friday with your muscle biopsy. I hope you are able to get the answers that you need. Do you know if they are going to be doing a " Fresh " muscle biopsy? And are they sending it out to another lab for processing? I noticed you stated that you started on the Mito cocktail after you saw the MDA doc and that it has improved your muscle strength, which is a good thing. Have you stopped taking the cocktail for a few weeks or a month before going for the biopsy? I know that some Doctors want you to be off of the supplements before having a muscle biopsy done. Just want to let you know that you will be in my thoughts and in my prayers. I hope everything goes well. Please update us when you can. Hugs, Ann-Marie At 02:20 PM 8/31/2005, you wrote: >I'm sure I may not be familiar to some, sorry I haven't been on here >much, but you all know how that goes. My eyes just can't see the type. >I have my 2nd muscle biopsy on Friday in Pittsburgh, PA. I'm hoping >this will help with a final diagonosis. I started onthe mito cocktail >after I saw the MDA doc, it has really improved my muscle strength, >although I still can't walk very far. Thanks to those who gave their >opinions about biopsy when I first joined, it was a great help. >Marla > > > > >Medical advice, information, opinions, data and statements contained >herein are not necessarily those of the list moderators. The author >of this e mail is entirely responsible for its content. List members >are reminded of their responsibility to evaluate the content of the >postings and consult with their physicians regarding changes in >their own treatment. > >Personal attacks are not permitted on the list and anyone who sends >one is automatically moderated or removed depending on the severity >of the attack. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 Marla Good luck on Friday. I'll be thinking of you. laurie > > Hi Marla, > > I am writing this in a larger font in hopes that you will be able to > read this. > > I wish you the best of luck this Friday with your muscle biopsy. I > hope you are able to get the answers that you need. Do you know if > they are going to be doing a " Fresh " muscle biopsy? And are they > sending it out to another lab for processing? > > I noticed you stated that you started on the Mito cocktail after you > saw the MDA doc and that it has improved your muscle strength, which > is a good thing. Have you stopped taking the cocktail for a few weeks > or a month before going for the biopsy? I know that some Doctors want > you to be off of the supplements before having a muscle biopsy done. > > Just want to let you know that you will be in my thoughts and in my > prayers. I hope everything goes well. Please update us when you can. > > Hugs, > Ann-Marie > > > > > At 02:20 PM 8/31/2005, you wrote: > > >I'm sure I may not be familiar to some, sorry I haven't been on here > >much, but you all know how that goes. My eyes just can't see the type. > >I have my 2nd muscle biopsy on Friday in Pittsburgh, PA. I'm hoping > >this will help with a final diagonosis. I started onthe mito cocktail > >after I saw the MDA doc, it has really improved my muscle strength, > >although I still can't walk very far. Thanks to those who gave their > >opinions about biopsy when I first joined, it was a great help. > >Marla > > > > > > > > > >Medical advice, information, opinions, data and statements contained > >herein are not necessarily those of the list moderators. The author > >of this e mail is entirely responsible for its content. List members > >are reminded of their responsibility to evaluate the content of the > >postings and consult with their physicians regarding changes in > >their own treatment. > > > >Personal attacks are not permitted on the list and anyone who sends > >one is automatically moderated or removed depending on the severity > >of the attack. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Marla- We will be praying for you. Make sure to take a copy of the anesthesia recommendations from the UMDF, such as avoidance of lactated ringers. http://www.umdf.org/mitoane.pdf is the direct link to the UMDF's anesthesia recommendations. Godspeed, Ann > > > > >I'm sure I may not be familiar to some, sorry I haven't been on here > > >much, but you all know how that goes. My eyes just can't see the type. > > >I have my 2nd muscle biopsy on Friday in Pittsburgh, PA. I'm hoping > > >this will help with a final diagonosis. I started onthe mito cocktail > > >after I saw the MDA doc, it has really improved my muscle strength, > > >although I still can't walk very far. Thanks to those who gave their > > >opinions about biopsy when I first joined, it was a great help. > > >Marla > > > > > > > > > > > > > > >Medical advice, information, opinions, data and statements contained > > >herein are not necessarily those of the list moderators. The author > > >of this e mail is entirely responsible for its content. List members > > >are reminded of their responsibility to evaluate the content of the > > >postings and consult with their physicians regarding changes in > > >their own treatment. > > > > > >Personal attacks are not permitted on the list and anyone who sends > > >one is automatically moderated or removed depending on the severity > > >of the attack. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.