Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 I was originally diagnosed with MS based on 3 MRIs. When I was told of the diagnosis I requested a referral to the " best " neuro in the area. The neuro examined the MRIs and took a very careful history. He then suggested that the lesions seen on the MRIs were not truly typical of MS and the family history pointed to a mitochondrial disorder. It was then that further tests were run (emg, lactic acid) and a diagnosis of MELAS was made based on a blood test. I was very fortunate that the diagnosis was made in only a three month period. Of course in retrospect I have had all sorts mito-related problems, misdiagnosed and mistreated, all my life. I will have continuing problems of all sorts but we are at last treating them as well as we can within the knowledge base that now exists. a Quote Link to comment Share on other sites More sharing options...
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