ROLL CALL

[Guest guest]

1. Jo K

2. Arlington Heights, IL

3. We have one child, phine (Joie) who turned 3 on March 6. Our

endocrinologist said that RSS is a possibility. We hope to confirm or disprove

with Dr. H in July. I am also pregnant and expect another child early July.

4. Joie was born 7 weeks early, delivered by C-section. She was 1 lb. 7 oz and

was 12 " long. She was in the hospital for 3 months. She was fed on a NJ tube

for approx. 4 months and a NG tube for approx. 10 more months. She came home

needing oxygen due to refluxing into the lungs, many reflux meds, and an NJ tube

for 24 hour drip feeds.

5. She is no longer on a feeding tube or any meds other than Miralax

occasionally for constipation.

6. She is seen by a regular pediatrician and an endocrinologist in Glencoe, IL -

Dr. Ediden. We were seeing a GI doctor from Children's Memorial, Dr. Suzanne

, but Joie no longer has issues with reflux.

7. Not officially diagnosed with RSS. She is not on the growth chart for height

or weight, but has had great growth over the last 6 months. She weighs 22 1/4

pounds and is 32.75 " tall.