hohum...enough of the doctors for now

January 21, 2006

Hey everyone,

I hope everyone had a wonderful Christmas and a great start to the New Year.

Unfortunately my new year started off horrible as I had a massive virus attack

on my computer that took me two weeks to get straightened around. Now I am back

online.

Other info is that my muscle biopsy came back completely normal, and even

though my carnitines and things were out of range on my blood test and metabolic

panel, Dr. Cohen does not feel that I have a mito disorder. I think that I

don't agree with him but I am just a nobody patient. Dr. Simpson doesn't want

to push to get me into Dr. Hirano at Columbia Presbyterian too quickly but that

is okay.

I do want to say that I too am having the irregular heartbeat issues as does

many of you, and it gets so bad that my heart will stop beating and make me feel

like my heart is going to blow out of my chest. Yet I am on a holter 30 day

cardiac monitor and my cardiologist feels that the skips that I am having are

perfectly normal. Of course I have only been having them for a few months and

haven't them before that. And of course since my biopsy and report came back

from Cleveland Clinic normal Dr. Simpson won't push my cardiologist on anything.

And also on my SLE's, he is going back to think that they are from some kind

of stroke problem and wants me to see a neurologist locally. So I am being

pushed off again.

But you know what folks, I am giving this all to the Lord right now, and

letting Him deal with this because I really don't think that these doctors have

a clue what is going on.

I am focusing on my ministry with my church, starting my own business, and

being a father and husband for as long as I am allowed by God. I guess you can

say that my faith in Doctors isn't anymore.

I will continue to read posts on here, but probably won't respond unless one

is directed to me. I will continue to have my mitohope.com website for as long

as can run it, and I will pray for you all every day and especially that these

doctors will get their heads out of the sand and really try to help the patients

and not just get their names on and in papers.

Love and Friendship to you all for being there for me so much.

McCombs

1 5:9-12

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