Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Hi, My name is Marla, I'm a 47 yr old woman. After several years of mis diagnosis and guessing, I was told yesterday that I have probable mitochondrial myopathy. I now use crutches to walk, but think I'll need some other form of help soon. One question I have; Yesterday I had my 3rd EMG. I saw the MDA doc who told me he is certain that I do have Mito, but won't give me the offical dx without a biopsy. He says the prognosis is the same for me, if I know which kind or not. Is leaving the biopsy decision up to me. I really want a name for this, but not sure it's worth the pain. I had a biospy done a few yrs back, but it wasn't done correctly. He also said they may not know even after the biopsy. Would like any thoughts on this. I'm so happy to have found a support group, I don't know anyone else trying to cope with this kind of disease. Hope to get to know you all soon. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.