MAGIC Convention Registration Uploaded

[Guest guest]

Salem here, first I have to apologize as I have not been on

line in I have no idea how long. Coaching softball and way too many

things happening simultaneously.

Please note that the 2004 MAGIC Convention Registration brochure is

now uploaded on the magicfoundation.org website. I did notice that

on two pages, not all the info on the " grid " was showing for me, but

that will get fixed soon.

Everyone on MAGIC's mailing list will be mailed a hard copy of the

registration info. Otherwise, you can email them at

mary@... or call them tollfree 800-3MAGIC3.

This summer we do expect more than the 120 families (450 people) we

had last year, which was JUST RSS/SGA families (not counting

another 450 from other divisions!!!). You can read all about the

various presentation topics on line, so I won't go into total detail

here. But in general -- Diagnosing RSS and how it differs from SGA,

Latest in RSS study results, Insulin Resistance and other risks for

RSS/SGA kids, Gut Dysmotility and what are the latest research

findings on our kids, a panel of RSS adults with a discussion on

practical adaptations that are essential for living as a short

statured adult, the ADD child, feeding therapy and how to help your

child eat and gain weight (3 hours!!!), and a seminar on " family

matters " -- marriage, siblings, grandparents, etc. when you have a

chronically ill child.

Then there is our RSS/SGA pool party. The fun dinners at night.

And thanks to a donation on behalf of , we have a TEEN

ROOM!!!! We have rented a foosball table and a ping pong table and

this is a room for 12 and up.

And lastly, being able to have a 20-30 minute consultation with Dr.

Madeleine Harbison, at no charge. (30 minutes for first timers).

We do NOT book any visits with Dr. H until you have already

registered for the convention, and then have returned a

questionnaire that we send you. So please, it doesn't help to email

me and say " Save me a Dr. H spot " ..... Last year we were able to

book all but 3 families who wanted to see her ... but those 3

families registered during the last week.

If you are coming, the best Dr. H spots are all day Wednesday and on

Thursday morning and early afternoon. But this means you have to

fly in early to the convention. Well worth it if you are a first-

time family and wanting a chance for your child to be evaluated by

this doctor.....

And lastly, we hope to have additional scholarship funds thanks to

some major fundraising by several RSS families. PLUS we can help

you raise your own funds. So to apply, I need you to mail your

federal tax return (either this year or last year) to me. Email me

privately for my mailing address. These scholarships cover hotel

for 3 nights and registration fees.

My belief is that for most families, you should be able to fundraise

your own monies to at least cover your transportation. I just did a

garage sale for our division, with one week's notice, did it for

only 3 hours on a Saturday morning, spent a total of 5 hours + that

morning, and raised $518. YOU CAN DO IT TOO!!!! And we can help

you do it. Just ask me!! These funds will be earmarked by MAGIC to

cover your own convention expenses!!!! Any donation to MAGIC in

your name is tax deductible to your donor!!! Ask your family and

friends! We have brochures with photos and they have tear off

donation forms. Ask me more!

Salem, MAGIC RSS/SGA Division, Co-Consultant with Katy &

filling in