Nausea/Sunny

[Guest guest]

Hi Sunny :-)

It is nice of you to remember me. I am only sorry that I wasn't able

to keep up with the list through all that time. Actually when I think

back to that time, I am amazed that I have not had to go to a feeding

tube yet. A visit to the GI specialist at that time, that was about

all he was offering as a suggestion. I was just too stubborn to

accept it and lucky enough that when I kept trying, it eventually

allowed me to get back to some form of eating.

It encourages me when I am low to remember how I just didn't think I

would make it back to any level of functioning that I would find

bearable, but I did at least for now.

Since you have mild GI difficulties Sunny, could I suggest...?

I often wish I knew then what I know now. [g] I suspect that

" preserving " digestive function is more possible when you understand

you have mito and how that all works. I didn't way back when my

difficulties were mild.

I think I would try to plan my meals carefully, getting as much

nutrition as I could [which I did], I would try to stretch the time

between meals as much as I could without bringing on symptoms [if you

get low blood sugar this makes it a little harder], I would make

smaller servings. I find my stomach can handle more of a variety of

foods, if I introduce them in very small amts and gradually increase

to a still below average size portion.

I try to plan " easy to digest " meals following more challenging to

digest meals. Easy to digest to me is anything that is blended into

liquid form, in half serving sizes. i.e., Yogurt/fruit/ground

nuts/protein powder. If you can plan a day a week as a day to let your

digestive tract rest, this can also be very helpful. I also do

freshly juiced green drinks to continue to get veggies which are

harder for me to digest. I used to be able to do a whole day of

nothing but juices, but those days are long gone. It is easy to

digest, but irritates my stomach lining unless I take it with other

foods now.

I guess I operate on the personal conclusion, that mito patients need

to pace and rest when they have overdone it. The Digestive System is

one system that it is hard to rest since we always have to eat. It is

possible to an extent to rest it and entirely possible to pace. I

just try to apply that principle to the extent it can be applied.

Thanks again Sunny...have a nice weekend :-)

Adam

>

>

> > HI, Adam

>

> I remember your posts from a while back, at a time when you were

> having severe difficulties, and when you did not post for a long while

> I was concerned. It is so good to hear from you, and to see that you

> have made some progress in finding answers for your severe eating

> problems. While they are not always happy answers, at least you have

> more control over your difficult digestive issues. You have my

> admiration for finding solutions for yourself, and I hope you continue

> to find more. I do not have the same digestive issues, but I am

> finding the best solutions for my problems have come from the same

> approach - observing my condition, trying different things, and trying

> to make connections to what has made things worse or better. And of

> course, as I have said many times here before, the many people posting

> here sharing their experiences has helped me tremendously, and I

> continue to appreciate it.

>

> Again, Adam, it is good to hear from you. I will remember your

> suggestions for my only mildly sensitive GI track, and thank you for

> sharing.

>

> Regards

>

> Sunny

>