Disability Question/For a

[Guest guest]

Hi a,

When I went for SSDI I initially wrote down Mitochondrial Myopathy. They wanted

more information and told me that they don't even have Mitocondrial Myopathy on

their list of disabilities. So I then explained what Mito was. I said that it is

a Rare Form of Muscular Dystrophy.

I wrote down the names of my doctors that I felt were the most important in my

care, including their addresses and phone numbers. Plus I had each of my doctors

write a letter to SSDI explaining my disability.

I listed the main reasons for my disability i.e.; fatigue, stroke-like episodes,

migraines, muscle weakness and cramping, losing my balance, etc...(you get the

idea) :-)

If I were you I would have the doctors that know you best to write a letter for

you and send it in with your new application. Don't have the doctors send it

into SSDI. The reason: I fear that it will get lost.

And a remember to make copies of your new application and a copy of the

doctors letters as well. :-)

Good Luck!! Have a Great Day

Hugs,

Ann-Marie

I have a question for those on Soc. Sec. Disability and those who

have filed for it. I am going under a review for my disability. I went

under review this past summer, but they feel more information is

necessary. What did you all put down for your medical reason for

disability? I know Mitochondrial Disease might not be known, especially

around here. Did you state that it fell under the umbrella of diseases

covered by MDA? I am also trying to decide what doctors to write down,

as some doctors only see me twice a year and don't understand why I

stopped working. Did you all put down all your doctors? I can't

remember what I did for my initial application and can not find it.

Thanks in advance for your help.

Smiles,

a