Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 Hi there and welcome to this wonderful group!! You will find so much information here and have a great place to vent as we all know how tough it can be sometimes. My daughter, Olivia, is 4.5 yrs and was diagnosed with RSS just after her 3rd birthday. She was born at 29 weeks by c-section weighing 1 lb. 11 oz, down to 1 lb. 7 oz. The diagnoses took so long because she had a 2 vessell cord which stunted her growth so they that was the answer for everything. I stuck to my guns and kept taking her to the Dr's for a Dx. because she was developing so slowly, sitting at 13 months, rolling at 15 months, walking at 25 months, front fontanelle was still open at 3 yrs, there were just so many signs that something was different that I wouldn't let it go. We have been so blessed to find this listserve and cannot show our gratitude enough for all of the help everyone has given us here. NY is a long way to travel but if you can raise the funds I would try to go to the convention in Chicago next summer. We're from Alberta, Canada and are in the process of several fundraisers to be able to attend the convention this summer, it has been an amazing journey and we are so excited to be able to go!!! The Dr's here really have no experience with RSS and we're flying blind. If you have Yahoo Messenger and like to chat you can add me to your list, my yahoo ID is leahdaf2000 Take care!!! Leah, mom to 9yrs, and Olivia 4.5 yrs, 18 lbs, 33 " (lactulose, senokot, zantac) Quote Link to comment Share on other sites More sharing options...
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