Update on Heidi

[Guest guest]

Hello!!

I just got off the phone with Heidi (some of you might know her by her

email address which is: Mom2Kidz3@... )

She is in the hospital(MGH) and asked me to please update the group on her

condition.

She had her G/J tube surgery done on Friday and is recooperating. Surgery

went well and they are now starting her on small amounts of pedialyte

through her J tube. She told me to tell you all that she can't wait to get

out of the hospital and go eat some Tai food and then vent/drain it out of

her G tube!! hehehehe She couldn't eat Tai food any longer because it

wouldn't digest but now it won't matter b/c she has the G tube to take care

of that. So once she heals she will be able to eat whatever she wants and

let the G tube take care of the problems. At least she will be able to

still eat orally and taste the food.

She said all the doctors and nurses have been great and are taking good

care of her. She wanted me to tell you all that she is on the 21st floor

with a fantastic view of the River(I think that was the name) and

that in order to get onto the 21st floor you have to be buzzed up by

security. That's right....she is on the VIP FLOOR!!

She LOVES it and said that her room even has REAL furniture and a

Refrigerator. And of course the room is private with the luxuries of a

fancy 4 STAR HOTEL.

She said she has no idea how she got that room, but my guess is that she is

on the " NUT CASE FLOOR " but they didn't want to tell her that

hehehe >:-} Sorry Heidi , I just had to say that since most times when Mito

patients go to the ER they think we are NUTS!!

Before her G/J tube surgery she had tests to show the surgeon where to

place the J tube and how well her intestines are working. One of those

tests is called a 24hour Manometry test and it is not a pleasant test at

all, actually I heard from some that it can be painful.

That's all for now. Please keep Heidi and her family in your thoughts and

in your prayers for a quick recovery so that she can come home and the

whole family will be all together again.

Hugs,

Ann-Marie

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