Re: we are new persons - Witold and Dorota

[Guest guest]

Dear Witold and Dorota,

I just wanted to welcome you to the list serve, and encourage you to post

any questions you might have. and Kim did a GREAT job providing you

with a place to start. Remember that everyone here started out in the same

position as you are now, knowing very little. We've all had to learn so that

we can help our kids battle the complications of RSS. Even here in the USA,

there are not many Drs that understand RSS.

My grandson, , was born full term, weighing 3lb 5oz, and measuring

15 " long. Feeding him, as an infant, was a nightmare, and by age 8.5 months

we had to resort to the placement of a g-tube. Our first year was the

hardest. He was frequently sick, and in the hospital.

is now 26 months of age, weighs 20lb 7oz, and measures 29.4 inches

long. He is doing much better this second year, and has made great strides

in all areas of development! It does get easier with time and age.

Once again, welcome. You have found a wonderful site, with lots of

informative, caring people to help you out.

Take care,

Pat (g-ma to , RSS, 26 months, 20# 7oz, 29.4 " , Prevacid, Singulair,

GT)