School issues was Re: Notes on my son and me (genetic testing)

[Guest guest]

I am waiting to hear from the Child Study team; I'm a bit worried I

blindsided them (they knew I was very interested in kindergarten for

the fall though), but I'd think they should have had a similar

situation in the past. He is very excited to be going to

kindergarten, although he'll miss some time because of my Boston

appointment and our MDA appointments, LOL.

My understanding is that I shouldn't offer to pay for anything, that

they should suggest options that work with their staff. At this

point, I'm not even sure if he will be considered classified in

kindergarten, as not being classified was our goal for next year

which would have been when he is eligible for public kindergarten.

What if he is not classified but still needs speech? Do you know if

the public school district has a responsibility in that case? Of

course we are thinking about the " disabled " status (504 or

something?) versus " classified " status, perhaps he can get speech

therapy as part of his 504 plan? He does not currently have a 504

plan.

Take care,

RH

> > We are getting our three kids (and ourselves!) ready for the new

> > school year. My four-year-old, who has a tentative mito

diagnosis,

> > is entering kindergarten (private, not public) in September.

Right

> > now, we'll probably pay for a speech therapist once per week to

visit

> > him there, but we may increase it to more visits.

> >

> > He is also still enrolled in his public special ed preschool

class,

> > and I'm checking with his Child Study team to see if they will

> > provide any help for him (doubt it) since he's leaving that

program.

> >

> > Maybe those of you who have worked with special kids can tell me

if

> > the public school Child Study Team has any role for children who

> > attend private school.

> >

> > Regarding myself, I don't know if I posted this but I have an

> > appointment with Dr. K's partner at the end of September. I also

> > just got back my genetic testing results from Horizon. There are

no

> > significant defects in the mtDNA (a few meaningless ones, normal

is

> > what it says). I pored over the results, and as far as I can

tell,

> > there was no nDNA sequencing done. Does anyone know if Horizon

does

> > nDNA sequencing too? I vaguely remember that it's much more

> > complicated, so I don't recall if they do it. I had been told in

the

> > past that I most likely have a nDNA defect, not a mtDNA defect.

> >

> > Take care,

> > RH

> >

> >

> >

> >

> >

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