Re: OT celiac disease

[Guest guest]

At 10:12 AM 4/11/2001 -0500, you wrote:

>I know that there a couple of you who are extremely knowledgeable about

>celiac disease. Problem is, I can't remember who you are.

>

>I am fighting an insurance company that decided to cover one child's

>endoscopy/biopsy and not the other two children's procedure claiming there

>wasn't enough evidence to warrant the procedure.

>

>I am hoping you can help me with info on the accuracy of certain blood

>tests and the genetics aspect of the disease. I need to check my facts to

>make sure that I am right.

>

>Thanks,

> in Houston

From www.celiaccenter.org (University of land School of Medicine)

" Currently, the Center for Celiac Research is involved in three critical

research areas:

1) Multi-Center Serological Screening Study to determine prevalence of

Celiac Disease in the United States

We have tested 8,199 individuals as part of the Multi-Center Serological

Study for the prevalence of Celiac Disease in the United States. This

number is comprised of the following: 4,162 healthy individuals (1,473

pediatric and 2,689 adult), 3,797 from risk groups (1,008 children with

symptoms, 618 adults with symptoms, 1,819 first-degree relatives and 352

second-degree relatives).

Our preliminary data indicates that the following number of individuals

tested positive for Celiac Disease:

General pediatric population 1 out of 163

General adult population 1 out of 150

General population 1 out of 154

Children with symptoms 1 out of 40

Adults with symptoms 1 out of 30

First-degree relatives of celiacs 1 out of 12

Second-degree relatives of celiacs 1 out of 11

For each child with symptoms, four children have CD without symptoms; and

For each adult with symptoms, 2 adults have CD without symptoms making

Celiac Disease a silent disease. "

I expect that these figures will be of some use to you...1 in 12 is a

pretty high risk.

Hope this helps and good luck.

>Jay Bigam

Marketing and Information Technology Manager

Kinnikinnick Foods Inc.

www.kinnikinnick.com

Toll Free: 1-