Feeding Clinic and Matt update

January 15, 2004

Hi all!

I just wanted to post a short note, but it may get long.

We just got back from our Chicago trip wtih Matt. The great news is

he has grown 2 1/2 inches since July and 3 pounds. He is doing just

awesome on the GH and his endo is thrilled.

He also saw a peds allergist, who tested him and it all came back

negative. So we really have no idea what he is allergic too.

But the best thing was the feeding clinic at Easter Seals. I mean

it, they were fantastic. I haven't had a chance to catch up on all

the posts while I was gone, but I saw several about a feeding

clinic. If they are as good as this one, Go For It!

These were the people at convention and they were awesome. The GI

doc really answered some questions for me, validated what our

regular GI guy is doing and had a couple of suggestions. The

speech/feeding therapist spent some time with Matt, watched him eat,

talk and play. She has suggested that one of Matt's problems is an

incorrect bite. His teeth don't meet right, so we need a peds

orthodontist. Plus, he needs speech/OT due to a sensory problem.

Evidently, he doesn't really use his left side of his mouth, only

the right. And he chews only enough to get the food in small enough

bites to pretty much swallow whole.

So, we have a long list of things to get started on and we will. I

have to say, the day I was there I was a bit overwhelmed. (Ask

) But they really were great and gave such awesome suggestions

that we can move on from here.

Anyway, I can go on and on, and will if you want to email me

privately. But the clinic was great and if any of you can make it

to Chicago for it you should try. We are still trying to get it all

approved through insurance, the first time through was denied. But

once they see the eval and the documented problems Matt has, we are

hoping for coverage. They were really helpful at the clinic, helped

me write letters and everything.

Email me for more info. And a special thanks to J. She really

goes out of her way for people, and I really appreciated her helping

me out during our appointment!!!

Beth

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