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Well I have some somewhat good news

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As many of you know I am an adult " RSS " that I put into parenthsis,

but now I can say it without the parenthesis. I received an email

from the head of Genetics at Kaiser San Francisco. He wrote that my

medical history and physical characteristics are that of a person who

has RSS. Yes....now I can utilize that as medical evidence with my

fight with Social Security. In all the paperwork that I have

submitted I have stated over and over about being short statured and

having RSS. They have not once acknowledge that I am short and that

part of my medical problems have to do with my being short.

I know many parents want their children to be independant and have

normal lives, but sometimes with the medical problems either early in

life or as we get older dealing with Social Security is real fun..not.

I hope everyone has a good weekend

Laurie

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