Guest guest Posted November 7, 2005 Report Share Posted November 7, 2005 Shayna, Good Luck to you with the biopsy. Sometimes laughter is the best medicine! God Bless you, and keep us posted, you'll be in my prayers....................Donna There are 11 messages in this issue. Topics in this digest: 1. Help! I need some feedback From: " Barbara Seaman " 2. Re: Help! I need some feedback From: dgregori 3. RE: Help! I need some feedback From: " Barbara Seaman " 4. Re: Help! I need some feedback From: Joanne Kocourek 5. Re: Help! I need some feedback From: z39z@... 6. If Janis Joplin had mito... From: " shaynapearl " 7. RE: Help! I need some feedback From: " Barbara Seaman " 8. RE: Help! I need some feedback From: " Barbara Seaman " 9. Re: 's stomach From: " dawnanich " 10. Re: Help! I need some feedback From: " dawnanich " 11. Chats Reminder, 11/7/2005, 9:00 pm From: ________________________________________________________________________ ________________________________________________________________________ Message: 1 Date: Sun, 6 Nov 2005 09:52:38 -0600 From: " Barbara Seaman " Subject: Help! I need some feedback I posted this to the CPT group, but thought I might get some helpful feedback here, especially from people who have episodes of muscle breakdown. Any responses appreciated. Barbara ----------------- Here's the problem: A certain adventurous son who shall remain nameless is dying to take a wild aerobatics plane ride as part of a vacation. His ancient Mummy is of two minds (proud he is so adventurous, scared he is TOO adventurous) and would like some honest input from other CPTers. First, the promo description of the ride: " Aerobatics is the ultimate roller coaster ride! You only live once and you haven't lived until you have flown upside down over the land, spiraled nose down towards the earth, looped the looped and barrel rolled your way across the skies. " Your pilot will test your courage as they explore the freedom to maneuver in three dimensions and complete a full routine of loops, rolls, stalls and dives whilst the G-forces compress and stretch your body. " Your plane for the aerobatics flight is a Pitts Special Biplane - a World War One style open cockpit aircraft. Your flight is a vigorous full aerobatics routine involving high 'G' forces and incredible maneuvers. Simply hang on to your hat (or should that be stomach), feel the wind in the wires and your silk scarf trailing in the slipstream. " You will experience a joy ride you will never forget in the Pitts Special. This aerobatics flight is not for the faint hearted - although it can be tamed down if you don't have 'iron guts'. " Due to the high performance nature of the Pitts we can't let you take the controls, but the ride is a wild one! " The Pitts Special Flight has a total turn around of 45 minutes. " http://www.adrenalin.com.au/aerobatics_flight_pitts_special_sydney_348_detai ls.aspx SO---the question is, what would this do to YOUR body, given the fact that you have CPT? Certainly sounds to me like it would give the muscles a good anaerobic workout, but shouldn't be aerobic, as nearly as I can tell, which would help. However, many eons ago I rode a Tilt-a-Whirl at Worlds of Fun---back when said son was a toddler and I was about his current age---and it took days for my muscles to recover from all the throwing around. This particular aerobatics ride would coincide with three weeks of a lot more walking than usual, so factor that into your response. Also factor in that walking all over London triggered a major episode for said son about five years ago. This mother does not have veto power, of course, but DOES have some influence. How to use it? That is the question. Barbara ________________________________________________________________________ ________________________________________________________________________ Message: 2 Date: Sun, 06 Nov 2005 08:05:44 -0800 From: dgregori Subject: Re: Help! I need some feedback Barbara, My gut reaction was that no way could my daughter or I do something like this if only for the dysautonomia aspects that go with mito. A non-mito person would have trouble adjusting there body mechanisms to that large range of quick changes much less a mito body. P.S. Good luck! Barbara Seaman wrote: >I posted this to the CPT group, but thought I might get some helpful >feedback here, especially from people who have episodes of muscle breakdown. >Any responses appreciated. > >Barbara >----------------- > >Here's the problem: A certain adventurous son who shall remain nameless is >dying to take a wild aerobatics plane ride as part of a vacation. His >ancient Mummy is of two minds (proud he is so adventurous, scared he is TOO >adventurous) and would like some honest input from other CPTers. > >First, the promo description of the ride: > > " Aerobatics is the ultimate roller coaster ride! You only live once and you >haven't lived until you have flown upside down over the land, spiraled nose >down towards the earth, looped the looped and barrel rolled your way across >the skies. > > " Your pilot will test your courage as they explore the freedom to maneuver >in three dimensions and complete a full routine of loops, rolls, stalls and >dives whilst the G-forces compress and stretch your body. > > " Your plane for the aerobatics flight is a Pitts Special Biplane - a World >War One style open cockpit aircraft. Your flight is a vigorous full >aerobatics routine involving high 'G' forces and incredible maneuvers. >Simply hang on to your hat (or should that be stomach), feel the wind in the >wires and your silk scarf trailing in the slipstream. > > " You will experience a joy ride you will never forget in the Pitts Special. >This aerobatics flight is not for the faint hearted - although it can be >tamed down if you don't have 'iron guts'. > > " Due to the high performance nature of the Pitts we can't let you take the >controls, but the ride is a wild one! > > " The Pitts Special Flight has a total turn around of 45 minutes. " > >http://www.adrenalin.com.au/aerobatics_flight_pitts_special_sydney_348_detai >ls.aspx > >SO---the question is, what would this do to YOUR body, given the fact that >you have CPT? Certainly sounds to me like it would give the muscles a good >anaerobic workout, but shouldn't be aerobic, as nearly as I can tell, which >would help. However, many eons ago I rode a Tilt-a-Whirl at Worlds of >Fun---back when said son was a toddler and I was about his current age---and >it took days for my muscles to recover from all the throwing around. This >particular aerobatics ride would coincide with three weeks of a lot more >walking than usual, so factor that into your response. Also factor in that >walking all over London triggered a major episode for said son about five >years ago. > >This mother does not have veto power, of course, but DOES have some >influence. How to use it? That is the question. > >Barbara > > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
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