response to 1% doubt...sleep sacks...registering for baby stuff

[Guest guest]

>>>>>Glad to hear you are

considering the Ponseti Treatment, but what's that 1%

of doubt you hold

on to?<<<<

Im not holding onto any doubt whatsoever. Im ready to

move on getting aquainted and I am currently working

with our insurance and pediatrician to align with a

ponsetti certified doctor at present, so that we may

be familiar and compatable when that time comes. We

are working through some insurance issues but Im not

concerned about it at all because I will do what we

have to do to make it happen. The 1% is not doubt but

rather the fact that I cannot make the decisions of

our baby completly on my own as my husband has an

equal say in things like this. I have posted about

this previously but I have been researching the

different methods available and stopped once I found

ponsetti since it fits my idealism so perfectly. My

husband has been very open to my opinions and such but

if still doing his own research and reading because

that is what he needs to do to feel just as informed

and educated as I am. I have given him various

sources of information and we talk about it alot. I

have heard him tell his family that this is the method

we will be choosing to use, so that is very positive.

But because of the way he is and his upbringing

(family of medical doctors), he doesn't share the

holistic idealism quite as much as I do (although he

is beginning to see why I embrace it as much as I do)

so when it comes to issues relating to medical care,

he has to come to realizations on things on his own,

no matter how much I push, he is just the kind of guy

who wants to look at all options himself and

UNDERSTAND them all so that we can be on the same

page. This used to be a big deal but its not anymore,

thats the way he is and I truly respect it because in

the end, he values my ideas and opinions completly and

stands even more firm in our decisions because I

allowed him the freedom to arrive there on his own

rather. I posted a few weeks ago asking for links

that compare and contrast the Ponsetti method witht he

surgical route and got some great feedback from some

of you (THANK YOU AGAIN SO MUCH!!) but again, if there

is furthur information out there that I can place

before him to remove the skepticism from his mind, I

would appreciate it so much. I feel like we are on

the same page finally, because we have heard from

parents who HAVE used surgery come back and say they

wish they knew there were other options,etc....plus

the benefits of ponsetti just cannot be denied. If I

had one single shred of fear that my husband wont in

the end support ponsetti, I would be writing a

different post, but I am very confident he understands

the MANY reasons why Ponsetti would be the best method

for our baby girl and is about to get on board with me

as I start the process of figuring out which doctor we

are going to use. I guess 1% might be rather high

because in actuality and reality, I think his mind is

already made up.

I just really want to thank those of you who have

helped me since I first found out we were dealing with

CF....I know in the beginning I was a mess as I began

to process and accept this part of my babys

life....but as I have begun to understand CF, I know

embrace this part of her and cant wait to endure this

road ahead...Im not sure i would change it because all

things do happen for a reason. I am sure in the end,

I will be the biggest advocate for ponsetti you will

find, but for now the unknown and uncertainty of what

to expect really still is on my mind. I just need to

see her and I think the rest will fall into place.

So any other suggestions on what TO register for or

what NOT to register for?

Also, I wanted to tell you mamas out there, that I am

seamstress and I design and sew primarily children's

clothing and nursery sets (I also do nursery

coordinates including painting coordinating wall

murals, etc), and I am working on a special sleep sack

for our baby and then all other kiddos effected by

CF.....if there are any complaints or anything you

would change about basic sleep sacks, please send me

some feedback. In the end, I want to come up with

something that makes them unique to CF babies and

easier for moms and dads to utilize (I hope I am

wording that right). If it wasnt for you guys, I

would have never stopped to think about how

challenging traditional two legged sleepers might be,

especially with diaper changing etc. Do the ones with

snaps all the way down make it easier or are they

still complicated?

Ok I have rambled enough....have a grate day and thank

you again, for everything.

peace,

Leighanne

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