RSS jaw issues, eye problems, etc.

[Guest guest]

Hello everyone -

I am not a frequent writer on the group but I am in need of some

advice/information, etc. My son, Logan, is 3 yr old. He has RSS,

gastric reflux, allergy to milk and peanuts, mild developmentally

delay and speech issues. Anyways, the lastest things we have

learned is he is considered very farsighted - he was seen by an

opthmalogist (for his eyes crossing) and he feels he will need at

least glasses if not surgery. He saw the dentist on Monday and he

says he has on overbite from using a pacifier - I tried explaining

the RSS jaw features but I do not think he took me seriously.

Lastly, we go to the urologist on Monday since my sons left testicle

has not come down in quite a while. He was seen for this a little

over a year ago and we were told it wasn't a problem, well now I

think it may be a problem. I am wondering if anyone else is

experiencing any of these problems? My son is doing very well

otherwise, growing well on the GH and is actually on the height and

weight charts at about 10%! I worry about the possible implications

of the above problems, it's bad enough our children are small, have

the normal sized head and some delays I cannot imagine adding eye

problems, testicle problems and jaw problems. Is there anything

that can be done for their jaw? Do RSS kids have more problems with

their eyes? I am sorry this is so long, I do not really have anyone

to talk to about this that can understand what we are going through.

Thank you,

Stacey

Logan,3, RSS and 12 non-RSS (stepson)