Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 Eileen - thank you so much! I just went to the site -- don't ask me how I haven't been there in the last few year! First of all, the link to " MAGIC " on the website pops up a copy of our website that is 4 years old! So I emailed the LPA contact and asked if they could update that info. Then I read through Dr. Saal's info and I see that he does use GH studies that are much older than the newer ones that have come out, and since the big meta-analysis came out after his posting as well, it isn't included. I wrote down his address, and Dr. Chernausek (one of the 2 leaders in the SGA study) is at the same hospital - and I have his phone number. SO I am going to try and track down Dr. Saar and talk to him. Thank you for connecting me to this! Everyone, remember, MAGIC is only as good as the information we get, and the volunteers we have. We are the only group specific for RSS and SGA parents -- so again, we have to be there for our own child, but for all the other children out there. Many many parents are NEVER on the listserve, many don't have access to a computer. If you find information you think is good or useful, on any subject , EMAIL ME!!!! magicrss@ mindspring.com. We are interested in alternative/homeopathic stuff, new behavioral practices you may have found useful, anything! Jenn > I absolutley agree with you about misinformation being posted on > this site. This happened recently and it upset me greatly! > My information about gh not having much effect on final height is > based on info on the LPA website. The possible side effects I > mentioned are contained in a letter written to me by Imogens > endochronologist Dr Buchahanan who is the Children > Nationwide Senior Lecturer Paediatric Endochronology based at King's > College Hospital in London. I have recently read through the info on > the Magic site and that does sound very encouraging.I do conceed > that my information is a few years old so I think my best course of > action is to see Dr Buchanan again and see if he has anything new to > say about gh treatment. As it states at the top of this site the > information on here shouldn't be used as a substitute for consulting > the health professionals. I apologise if I have muddied the gh issue > and given out misinformation but I also think that it is useful for > new parents to see that not everyone chooses gh for their child and > that there is another way. > I wish I had the conviction that most seem to have about gh > treatment but I just don't! But I will be looking into it again. > Best wishes Eileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 Glad to be of help! I obviously need the most up to date info I can lay my hands on to make my decision. Eileen magicrss magicrss@...> wrote: Eileen - thank you so much! I just went to the site -- don't ask me how I haven't been there in the last few year! First of all, the link to " MAGIC " on the website pops up a copy of our website that is 4 years old! So I emailed the LPA contact and asked if they could update that info. Then I read through Dr. Saal's info and I see that he does use GH studies that are much older than the newer ones that have come out, and since the big meta-analysis came out after his posting as well, it isn't included. I wrote down his address, and Dr. Chernausek (one of the 2 leaders in the SGA study) is at the same hospital - and I have his phone number. SO I am going to try and track down Dr. Saar and talk to him. Thank you for connecting me to this! Everyone, remember, MAGIC is only as good as the information we get, and the volunteers we have. We are the only group specific for RSS and SGA parents -- so again, we have to be there for our own child, but for all the other children out there. Many many parents are NEVER on the listserve, many don't have access to a computer. If you find information you think is good or useful, on any subject , EMAIL ME!!!! magicrss@ mindspring.com. We are interested in alternative/homeopathic stuff, new behavioral practices you may have found useful, anything! Jenn > I absolutley agree with you about misinformation being posted on > this site. This happened recently and it upset me greatly! > My information about gh not having much effect on final height is > based on info on the LPA website. The possible side effects I > mentioned are contained in a letter written to me by Imogens > endochronologist Dr Buchahanan who is the Children > Nationwide Senior Lecturer Paediatric Endochronology based at King's > College Hospital in London. I have recently read through the info on > the Magic site and that does sound very encouraging.I do conceed > that my information is a few years old so I think my best course of > action is to see Dr Buchanan again and see if he has anything new to > say about gh treatment. As it states at the top of this site the > information on here shouldn't be used as a substitute for consulting > the health professionals. I apologise if I have muddied the gh issue > and given out misinformation but I also think that it is useful for > new parents to see that not everyone chooses gh for their child and > that there is another way. > I wish I had the conviction that most seem to have about gh > treatment but I just don't! But I will be looking into it again. > Best wishes Eileen --------------------------------- Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.