Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 Sabina, I have posted a picture of my son Jonathon when he was about 4. I have tried to outline the face to show you what we mean by triangular. Hope it helps. Pattie > I am a new member and havde not posted before. My daughter is still > in the investigation stage, she was diagnosed to have skeletal > dysplasia before birth due to short limbs but after birth was labeled > proportionate IUGR. She has some characteristics of RSS, IUGR (3- 15 > lb and 15.5inches at 36 weeks), large forehead with mild bossing, > huge fontanels, blue sclera (a rarer trait), and feeding problem, > delayed bone age. I dont understand the triangle > face thing, because none of the pictures of the RSS kids have seen > the faces look triangular to me. She is on NG tube for almost a year, > she now eats on her own during the day (4 meals each about 4 ounches > formula+cereal+baby food mixed to about 30 cal/oz) and 9 hour drip > feed at night. Despite her weight she has a cubby appearance. THe > geneticist didnt think she was > RSS but did not outright rule it out. Her endo is testing for GH, > Noonan syndrome,etc. but has not mentioned RSS. posted a couple of > pictures (they are taken at 9 and 12 months) in the album under > Naomi. She is now 12.5 lbs and 23 inches, but is quite " chubby " in > appearance despite the low weight. Wanted some opinion from experts > here on RSS. > Sabina Quote Link to comment Share on other sites More sharing options...
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