Roll Call Carmen S.

[Guest guest]

Okay, I'm a little behind on reading email! So here we are.

1). Carmen S. and Hubby

2). ville, TX, 70 miles SW of Fort Worth, TX

3). Two children

Paisley age 11, Not RSS, 5 feet tall and 95 pounds.

Storm Age 8, RSS, 4 feet tall (48 " ) and 50 pounds.

4). Storm: 4lb. 5 oz, 16 1/2 " long at birth by C-section. They say 2

weeks early, I say on time! He suffered from very low blood sugars

and was on an I.V. for 3 days because, suprise, he did not eat well.

Paisley was 9 lbs. 2 oz. and 21 " long, can you say huge!!!!

5). Storm has never had a feeding tube, (although he probably needed

one between one and four years of age, but we knew nothing then)

He has taken periactin in the past but is off of it due to a little

too much weight gain. He takes prevacid, twice a day, reglan, twice a

day and also is on flovent for coughing asthma (possibly due to

resperation of reflux fluids!) and Albuterol as needed for asthma.

He also takes GH. Humatropen, Not sure of dose right this minute. It

is 7 clicks on a 12 mg. cartridge. (I think Dr. H would flip out, but

he was not growing on the lower dose). He has been on GH for two

years this week!

6). We see Dr. Willcutts, through Cook Children's in Fort Worth, TX.

Awesome hospital and I love the nurse practitioner that we actually

see.

7). Storm was diagnosed at 10 months and we were told there was

nothing we could do to help him grow, he was just goin to be small.

We found out different when we found MAGIC when Storm was 3 years old.

8). If you can, and you have never been to the MAGIC convention, GO!

It has made such a huge difference in our lives and our outlook. It

also has made a HUGE difference for Storm. For one week a year, he is

the same as everyone else rather than different!

We all are! What an amazing blessing!

Blessings to you all,

Carmen, Mom to way too many kids! My two plus three foster children.