Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Hi my name is and we just received the diagnosis of RSS on my daughter, Hannah yesterday (she will be 3 in 4 months. She weighed 5lb8oz at birth and was 18 " . I really began searching for answers when she dropped to 7 blocks off the growth charts in both height and weight about 8 months ago(previously she was 3 blocks off and had stayed there since birth. My doctor really didn't think anything was wrong with her- even after receiving back abnormal blood work. I spoke with a nutritionist and started her on at least 3-4 cans of Pediasure daily as well as trying to get her to eat something aprox every two hrs if she wasn't drinking a Pediasure. Her Blood Sugar was running in the 50s after eating a large meal. She now weighs 22 1/2 lbs and is 32 1/2 " which is 2 1/2 lb gain since her 2nd Birthday (her head was in the 75th percantile for her age). I am wanting to know if there are any parents that live in Oklahoma? How rare is this? And basically what is next. To make my life even more interesting my little boy was diagnosed with autism 3 wks ago. Anyone out there please help with answers. Quote Link to comment Share on other sites More sharing options...
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