Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 Hi, I'm new. I found this group yesterday when I was doing some research on Silver Syndrome. My son was born premature at 30 weeks (IUGR) weighing 1 lb. 13 oz. 13 " in length. He will be 2 years old next month. We are having a hard time getting him to gain weight. He is very tiny. We also have some developmental delays. Currently, we have speech and occupational therapies twice a week and a nutritionist through Early Intervention. Yesterday, I had to take to the doctor because he was very sick - he has bronchitis. I asked her if she had any concerns about his weight and she said right now she is leaning toward Silver. She didn't give me a lot of information but said we would discuss it at his two year old check up next month. We have not had any genetic testing done yet but are planning to do so. I have to be honest and say that I am very overwhelmed. I have many thoughts and emotions going through me right now. I could ramble on and on! I guess I'm posting this messaging because I am looking for some positive feedback on this condition instead of laboring over the " negative " . I'm preparing myself for this diagnosis as I have found many of the traits related to RSS are similiar to what we are experiencing with . I'm sitting here wondering what I did wrong and how I can fix this. I don't think I can fix it but learn more about it. I don't know what I'm saying. Any information or advise you can offer I would be so grateful. Thank you, karaticia Quote Link to comment Share on other sites More sharing options...
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