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Hello-

I just found this list the other day.. I have a little girl named

Madeline who will be turning 9 in April. She was diagnosed with RSS

in May of 2001. It took us a very long time to figure out what was

happening with Madeline. At almost 9 years old, Madeline weighs

35lbs and is approximately 46inches tall.

I do not know much about RSS and really have not had a lot of

problems with Madeline except for lately, she always has stomach

aches and head aches. I recently started searching on line again to

see if maybe her stomach aches and head aches may be related to

RSS.

Any advise or input would be greatly appreciated.. I am going to

spend some time looking at past postings to see how we fit in here.

Thank you for your time and any thoughts are greatly appreciated.

Jenni V

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