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Re: Fetal diagnosis (to )

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I just wanted you to know that I made an appt with Dr. Wilner for

next week; thank you so much for the recommendation. I figure if

nothing else, she'll be able to allay some of my fears and be

realistic about what syndromes, dysplasias, etc. may or may not

fit my baby's slow growth pattern.

It's funny that you mentioned waiting to deliver your son till 38

weeks. I've recently been thinking about that myself; I was

wondering how my peri/ob will make the call about delivering

early since the growth is so off (I'm 30 weeks today). I also feel

that right now the baby is doing better in there than she would

out here. I truly believe her growth issues are genetic rather than

environmental, and I don't want to add the problems of a

preemie to the mix if it isn't truly necessary.

How far behind was Jonah at 38 weeks? Did the growth slow

more the farther along you got? How did your peri/ob know to

wait that long and not blame his growth issues on environmental

causes? Was it just a matter of continuous BPPs and NSTs?

Thanks again,

> ,

> I don't mind your questions at all. I know exactly what you are

going

> through as I was so fearful of the unknown as well. I loved

being pregnant,

> but the emotional stress was so difficult. However, Dr. Wilner

provided

> some answers and some piece of mind for me. Nothing was

for sure and she

> never said specifically RSS, but she was pretty sure it was not

> achodoplasia, but another growth disorder. Anyway, I think one

of the best

> things I did was wait until Jonah was full term, 38 weeks to

deliver and eat

> a lot and well. Since he was safe and would not do better

outside the womb,

> it made more sense to let him grow as much as possible so

we did not have to

> worry about preemie issues. Anyway, to answer some of your

questions. My

> son is only 21/2 so I can't everything and have many of the

same concerns as

> you, but although it is different and challenging handling some

of the

> issues related to RSS, there is normalcy and yes, Jonah has

an enormous

> amount of energy. I hope this helps and let me know if I can

help with

> anything else.

> All the best,

>

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